Lessons from a qualitative study of treatment experiences and perceptions in people with haemophilia in France

Abstract

Haemophilia A and B (HA/HB) are congenital, X-linked recessive bleeding disorders caused by deficiency of clotting factor VIII (FVIII) or IX (FIX), respectively. People with haemophilia (PwH) have increased risk of spontaneous or traumatic bleeding in joints, muscles, or soft tissues, which can be severe in people with HA/HB with inhibitors (HAwI/HBwI). Despite advances in haemophilia treatment, there are remaining and emerging unmet needs in PwH.

Keywords

• haemophilia
• ethnographic interviews
• unmet needs
• treatment perceptions
• emicizumab
• factor replacement therapy