Clinical and Translational Allergy (Dec 2024)
10 practical priorities to prevent and manage serious allergic reactions: GA2LEN ANACare and EFA Anaphylaxis Manifesto
- Antonella Muraro,
- Debra de Silva,
- Marcia Podesta,
- Aikaterini Anagnostou,
- Victoria Cardona,
- Susanne Halken,
- Pete Smith,
- Luciana Kase Tanno,
- Paul Turner,
- Margitta Worm,
- Montserrat Alvaro‐Lozano,
- Stefania Arasi,
- Anna Asarnoj,
- Simona Barni,
- Kirsten Beyer,
- Lucy A. Bilaver,
- Andrew Bird,
- Roberta Bonaguro,
- Helen A. Brough,
- R. Sharon Chinthrajah,
- Emma E. Cook,
- Céline Demoulin,
- Antoine Deschildre,
- Timothy E. Dribin,
- Motohiro Ebisawa,
- Montserrat Fernandez‐Rivas,
- Alessandro Fiocchi,
- David M. Fleischer,
- Eleanor Garrow,
- Jennifer Gerdts,
- Mattia Giovannini,
- Kirsi M. Järvinen,
- Mary Kelly,
- Edward F. Knol,
- Gideon Lack,
- Francesca Lazzarotto,
- Thuy‐My Le,
- Stephanie Leonard,
- Jay Lieberman,
- Michael Makris,
- Lianne Mandelbaum,
- Mary Jane Marchisotto,
- Gustavo Andres Marino,
- Francesca Mori,
- Caroline Nilsson,
- Anna Nowak‐Wegrzyn,
- Mikaela Odemyr,
- H. N. G. Oude Elberink,
- Kati Palosuo,
- Nandinee Patel,
- Jennifer Pier,
- Sung Poblete,
- Rima Rachid,
- Pablo Rodríguez del Río,
- Maria Said,
- Hugh A. Sampson,
- Angel Sánchez Sanz,
- Sabine Schnadt,
- Fallon Schultz,
- Alice Toniolo,
- Julia E. M. Upton,
- Carina Venter,
- Brian P. Vickery,
- Berber Vlieg‐Boerstra,
- Julie Wang,
- Graham Roberts,
- Torsten Zuberbier,
- GA2LEN ANACare Centres and EFA
Affiliations
- Antonella Muraro
- Padua University Hospital Padua Italy
- Debra de Silva
- The Evidence Centre London UK
- Marcia Podesta
- European Federation of Allergy and Airways Diseases Patients' Associations Brussels Belgium
- Aikaterini Anagnostou
- Children's Hospital Houston Texas USA
- Victoria Cardona
- Hospital Universitari Vall d'Hebron Barcelona Spain
- Susanne Halken
- Hans Christian Andersen Children's Hospital and University of Southern Denmark Odense Denmark
- Pete Smith
- Griffith University Southport Queensland Australia
- Luciana Kase Tanno
- Hôpital Arnaud de Villeneuve ‐ University Hospital of Montpellier Montpellier France
- Paul Turner
- Imperial College London London UK
- Margitta Worm
- Charite Univeritätsmedizin Berlin Berlin Germany
- Montserrat Alvaro‐Lozano
- Hospital Sant Joan de Déu Barcelona Spain
- Stefania Arasi
- Bambino Gesù Children's Hospital Rome Italy
- Anna Asarnoj
- Astrid Lindgren Children's Hospital Karolinska University Hospital Stockholm Sweden
- Simona Barni
- Meyer Children's Hospital IRCCS Florence Italy
- Kirsten Beyer
- Charite Univeritätsmedizin Berlin Berlin Germany
- Lucy A. Bilaver
- Northwestern University Evanston Illinois USA
- Andrew Bird
- University of Texas Southwestern University Dallas Texas USA
- Roberta Bonaguro
- Padua University Hospital Padua Italy
- Helen A. Brough
- Guy's and St Thomas' NHS Foundation Trust and King's College London London UK
- R. Sharon Chinthrajah
- Stanford University Stanford California USA
- Emma E. Cook
- ATOPICCO Network for Children of the Earth Tokyo Japan
- Céline Demoulin
- AFPRAL Paris France
- Antoine Deschildre
- Université de Lille Lille France
- Timothy E. Dribin
- Cincinnati Children's Hospital Medical Center and University of Cincinnati Cincinnati Ohio USA
- Motohiro Ebisawa
- NHO Sagamihara National Hospital Sagamihara Japan
- Montserrat Fernandez‐Rivas
- Hospital Clinico San Carlos Universidad Complutense IdISSC Madrid Spain
- Alessandro Fiocchi
- Pediatric Hospital Bambino Gesù Rome Italy
- David M. Fleischer
- University of Colorado and Children's Hospital Colorado Aurora Colorado USA
- Eleanor Garrow
- Food Allergy and Anaphylaxis Connection Team West Chester Ohio USA
- Jennifer Gerdts
- Food Allergy Canada North York Ontario Canada
- Mattia Giovannini
- Meyer Children's Hospital IRCCS Florence Italy
- Kirsi M. Järvinen
- University of Rochester New York New York USA
- Mary Kelly
- Anaphylaxis UK Farnborough UK
- Edward F. Knol
- University Medical Center Utrecht Utrecht The Netherlands
- Gideon Lack
- Guy's and St Thomas' NHS Foundation Trust and King's College London London UK
- Francesca Lazzarotto
- Padua University Hospital Padua Italy
- Thuy‐My Le
- University Utrecht Utrecht The Netherlands
- Stephanie Leonard
- University of California, San Diego La Jolla California USA
- Jay Lieberman
- University of Tennessee Health Science Center and LeBonheur Children's Hospital Memphis Tennessee USA
- Michael Makris
- National and Kapodistrian University of Athens Athens Greece
- Lianne Mandelbaum
- No Nut Traveler Inc Livingston New Jersey USA
- Mary Jane Marchisotto
- MJM Advisory LLC New York New York USA
- Gustavo Andres Marino
- Hospital Universitario Austral and Fundación SOS Alergia Pilar Argentina
- Francesca Mori
- Meyer Children's Hospital IRCCS Florence Italy
- Caroline Nilsson
- Karolinska Institutet Stockholm Sweden
- Anna Nowak‐Wegrzyn
- New York University New York New York USA
- Mikaela Odemyr
- Astma‐ och Allergiförbundet Stockholm Sweden
- H. N. G. Oude Elberink
- University of Groningen Groningen The Netherlands
- Kati Palosuo
- Helsinki University Hospital Helsinki Finland
- Nandinee Patel
- Imperial College London London UK
- Jennifer Pier
- University of Rochester Rochester New York USA
- Sung Poblete
- Food Allergy Research & Education (FARE) McLean Virginia USA
- Rima Rachid
- Boston Children's Hospital Harvard Medical School Boston Massachusetts USA
- Pablo Rodríguez del Río
- Hospital Infantil Universitario Niño Jesús Madrid Spain
- Maria Said
- Allergy & Anaphylaxis Australia Sydney New South Wales Australia
- Hugh A. Sampson
- Icahn School of Medicine at Mount Sinai New York New York USA
- Angel Sánchez Sanz
- AEPNAA Spanish Association of People with Food and Latex Allergy Madrid Spain
- Sabine Schnadt
- Deutscher Allergie‐ und Asthmabund Berlin North Rhine‐Westphalia Germany
- Fallon Schultz
- International FPIES Association Quincy Massachusetts USA
- Alice Toniolo
- Padua University Hospital Padua Italy
- Julia E. M. Upton
- University of Toronto Toronto Ontario Canada
- Carina Venter
- University of Colorado Denver Colorado USA
- Brian P. Vickery
- Emory University School of Medicine and Children's Healthcare of Atlanta Atlanta Georgia USA
- Berber Vlieg‐Boerstra
- OLVG Hospital Amsterdam The Netherlands
- Julie Wang
- Icahn School of Medicine at Mount Sinai New York New York USA
- Graham Roberts
- University of Southampton Southampton UK
- Torsten Zuberbier
- Charite Univeritätsmedizin Berlin Berlin Germany
- GA2LEN ANACare Centres and EFA
- DOI
- https://doi.org/10.1002/clt2.70009
- Journal volume & issue
-
Vol. 14,
no. 12
pp. n/a – n/a
Abstract
Abstract This Anaphylaxis Manifesto calls on communities to prioritise 10 practical actions to improve the lives of people at risk of serious allergic reactions. The Global Allergy and Asthma European Network and the European Federation of Allergy and Airways Diseases Patients' Associations (EFA) compiled patient‐centric priorities. We used qualitative consensus methods, research evidence and feedback from over 200 patient groups, stakeholder organisations and healthcare professionals. We encourage healthcare, education and food organisations to collaborate with people at risk of serious allergic reactions to tackle safety, anxiety and financial burdens for individuals and societies. Key priorities for prevention include awareness‐raising campaigns for the public and professionals, school and workplace initiatives and mandatory precautionary allergen labels on food. Priorities for improving immediate and long‐term management include educating healthcare professionals, patients and schools about when and how to use adrenaline, funding two approved adrenaline devices for everyone at risk, and facilitating access to allergy specialists. Integrated care pathways should include clinical and non‐clinical management options such as individualised risk assessment and quality of life assessment, self‐management plans, dietetic and psychosocial support and peer support. Organisations around the world are committing to work together towards these priorities.
Keywords
