Research Involvement and Engagement (Apr 2023)
Key issues for stakeholder engagement in the development of health and healthcare guidelines
- Jennifer Petkovic,
- Olivia Magwood,
- Lyubov Lytvyn,
- Joanne Khabsa,
- Thomas W. Concannon,
- Vivian Welch,
- Alex Todhunter-Brown,
- Marisha E. Palm,
- Elie A. Akl,
- Lawrence Mbuagbaw,
- Thurayya Arayssi,
- Marc T. Avey,
- Ana Marusic,
- Richard Morley,
- Michael Saginur,
- Nevilene Slingers,
- Ligia Texeira,
- Asma Ben Brahem,
- Soumyadeep Bhaumik,
- Imad Bou Akl,
- Sally Crowe,
- Laura Dormer,
- Comfort Ekanem,
- Eddy Lang,
- Behrang Kianzad,
- Tanja Kuchenmüller,
- Lorenzo Moja,
- Kevin Pottie,
- Holger Schünemann,
- Peter Tugwell
Affiliations
- Jennifer Petkovic
- Bruyère Research Institute
- Olivia Magwood
- Bruyère Research Institute
- Lyubov Lytvyn
- McMaster University
- Joanne Khabsa
- Clinical Research Institute, American University of Beirut Medical Center
- Thomas W. Concannon
- The RAND Corporation and Tufts University School of Medicine
- Vivian Welch
- Bruyère Research Institute
- Alex Todhunter-Brown
- Nursing Midwifery and Allied Health Professions (NMAHP) Research Unit, Glasgow Caledonian University
- Marisha E. Palm
- Tufts Medical Center, Tufts Clinical and Translational Science Institute
- Elie A. Akl
- Department of Internal Medicine, American University of Beirut
- Lawrence Mbuagbaw
- Department of Health Research Methods, Evidence and Impact, McMaster University
- Thurayya Arayssi
- Weill Cornell Medicine –Qatar
- Marc T. Avey
- Canadian Council on Animal Care
- Ana Marusic
- Department of Research in Biomedicine and Health, Center for Evidence-Based Medicine, University of Split School of Medicine
- Richard Morley
- Cochrane
- Michael Saginur
- Hôpital Montfort
- Nevilene Slingers
- South African Medical Research Council
- Ligia Texeira
- Centre for Homelessness Impact
- Asma Ben Brahem
- Director Guidelines and Care Pathways, INEAS (National Authority for Assessment and Accreditation in Healthcare)
- Soumyadeep Bhaumik
- Meta-Research and Evidence Synthesis Unit, The George Institute for Global Health
- Imad Bou Akl
- Department of Internal Medicine, American University of Beirut
- Sally Crowe
- Crowe Associates
- Laura Dormer
- Becaris Publishing Limited
- Comfort Ekanem
- Ministry of Health, Cross River State
- Eddy Lang
- Cumming School of Medicine, University of Calgary, Alberta Health Services
- Behrang Kianzad
- Center for Advanced Studies in Biomedical Innovation Law (CeBIL), Faculty of Law, Copenhagen University
- Tanja Kuchenmüller
- School of Public Health, Bielefeld University
- Lorenzo Moja
- Department of Biomedical Sciences for Health, University of Milan
- Kevin Pottie
- Departments of Family Medicine and Epidemiology and Biostatistics, Western University
- Holger Schünemann
- Clinical Epidemiology and of Medicine, WHO Collaborating Centre for Infectious Diseases, Research Methods and Recommendations
- Peter Tugwell
- Department of Medicine, Faculty of Medicine, University of Ottawa
- DOI
- https://doi.org/10.1186/s40900-023-00433-6
- Journal volume & issue
-
Vol. 9,
no. 1
pp. 1 – 10
Abstract
Abstract Established in 2015, the Multi-Stakeholder Engagement (MuSE) Consortium is an international network of over 120 individuals interested in stakeholder engagement in research and guidelines. The MuSE group is developing guidance for stakeholder engagement in the development of health and healthcare guideline development. The development of this guidance has included multiple meetings with stakeholders, including patients, payers/purchasers of health services, peer review editors, policymakers, program managers, providers, principal investigators, product makers, the public, and purchasers of health services and has identified a number of key issues. These include: (1) Definitions, roles, and settings (2) Stakeholder identification and selection (3) Levels of engagement, (4) Evaluation of engagement, (5) Documentation and transparency, and (6) Conflict of interest management. In this paper, we discuss these issues and our plan to develop guidance to facilitate stakeholder engagement in all stages of the development of health and healthcare guideline development.
Keywords
