Journal of Blood Medicine (Dec 2023)
Current Status and Challenges in Delivering Comprehensive Care for Patients with Hemophilia
Abstract
Shosaku Nomura Center of Thrombosis and Hemostasis, Kansai Medical University Medical Center, Moriguchi, Osaka, JapanCorrespondence: Shosaku Nomura, Center of Thrombosis and Hemostasis, Kansai Medical University Medical Center, 10-15 Fumizono-cho, Moriguchi, Osaka, 570-8507, Japan, Tel + 81 6 6992 1001, Fax + 81 6 6992 1066, Email [email protected]: The importance of comprehensive care as a treatment strategy for patients with hemophilia is recognized worldwide. Comprehensive care entails addressing full spectrum of medical and psychological aspects impacting both patients and their families. The primary objective of comprehensive care for individuals with hemophilia is to enable them to lead their daily lives just as anyone else would. To achieve this goal, it is necessary to have a positive and collaborative approach across various healthcare disciplines. This extends beyond clinical specialists, encompassing pediatricians, hematologists, orthopedic surgeons, dental and oral surgeons, gynecologists, nurses, physical therapists, clinical psychologists, and other professionals from diverse fields. This review article discusses the current status and challenges associated with comprehensive care for patients with hemophilia. We categorize these challenges as follows: hemophilic arthritis, rehabilitation, oral care, transitioning from pediatric to adult care, addressing carrier issues, and providing psychological care. There is still substantial work to be undertaken in addressing these hurdles and advancing the quality of comprehensive care for hemophilia patients.Keywords: hemophilia, comprehensive care, collaborative approach, psychological care, carrier issues
