Quality standards for managing children and adolescents with bronchiectasis: an international consensus
Anne B. Chang,
Jeanette Boyd,
Andrew Bush,
Adam T. Hill,
Zena Powell,
Angela Zacharasiewicz,
Efthymia Alexopoulou,
James D. Chalmers,
Andrew J. Collaro,
Carolina Constant,
Konstantinos Douros,
Rebecca Fortescue,
Matthias Griese,
Jonathan Grigg,
Andreas Hector,
Bulent Karadag,
Oleksandr Mazulov,
Fabio Midulla,
Alexander Moeller,
Marijke Proesmans,
Christine Wilson,
Stephanie T. Yerkovich,
Ahmad Kantar,
Keith Grimwood
Affiliations
Anne B. Chang
Australian Centre for Health Services Innovation, Queensland University of Technology, Brisbane, Australia
Jeanette Boyd
European Lung Foundation, Sheffield, UK
Andrew Bush
Department of Paediatric Respiratory Medicine, Royal Brompton Hospital, London, UK
Adam T. Hill
Dept of Respiratory Medicine, Royal Infirmary, Edinburgh, UK
Zena Powell
European Lung Foundation Bronchiectasis Paediatric Patient Advisory Group
Angela Zacharasiewicz
Department of Pediatrics, and Adolescent Medicine, Teaching Hospital of the University of Vienna, Wilhelminen Hospital, Klinik Ottakring, Vienna, Austria
Efthymia Alexopoulou
2nd Radiology Department, National and Kapodistrian University of Athens, Attikon University Hospital, Athens, Greece
James D. Chalmers
College of Medicine, University of Dundee, Dundee, UK
Andrew J. Collaro
Australian Centre for Health Services Innovation, Queensland University of Technology, Brisbane, Australia
Carolina Constant
Department of Pediatrics, Hospital de Santa Maria and Faculty of Medicine, University of Lisbon, Lisbon, Portugal
Konstantinos Douros
Allergology and Pulmonology Unit, 3rd Paediatric Dept, National and Kapodistrian University of Athens, Athens, Greece
Rebecca Fortescue
Population Health Research Institute, St George's University of London, London, UK
Matthias Griese
Department of Pediatrics, Dr. von Hauner Children's Hospital, University Hospital, Ludwig-Maximilians-Universität Munich, Munich, Germany
Jonathan Grigg
Centre for Genomics and Child Health, Blizard Institute, Queen Mary University of London, London, UK
Andreas Hector
Division of Respiratory Medicine, University Children's Hospital Zurich, Zurich, Switzerland
Bulent Karadag
Division of Pediatric Pulmonology, Marmara University Faculty of Medicine, Istanbul, Turkey
Oleksandr Mazulov
National Pirogov Medical University, Vinnytsya, Ukraine
Fabio Midulla
Department of Maternal Science, Sapienza University of Rome, Rome, Italy
Alexander Moeller
Division of Respiratory Medicine, University Children's Hospital Zurich, Zurich, Switzerland
Marijke Proesmans
Department of Pediatrics, Pediatric Pulmonology, University Hospital of Leuven, Leuven, Belgium
Christine Wilson
Department of Physiotherapy, Queensland Children's Hospital, Brisbane, Australia
Stephanie T. Yerkovich
Australian Centre for Health Services Innovation, Queensland University of Technology, Brisbane, Australia
Ahmad Kantar
Pediatric Asthma and Cough Centre, Istituti Ospedalieri Bergamaschi, University and Research Hospitals, Bergamo, Italy
Keith Grimwood
NHMRC Centre for Research Excellence in Paediatric Bronchiectasis (AusBREATHE), School of Medicine and Dentistry, and Menzies Health Institute Queensland, Griffith University, Southport, Australia
The global burden of bronchiectasis in children and adolescents is being recognised increasingly. However, marked inequity exists between, and within, settings and countries for resources and standards of care afforded to children and adolescents with bronchiectasis compared with those with other chronic lung diseases. The European Respiratory Society (ERS) clinical practice guideline for the management of bronchiectasis in children and adolescents was published recently. Here we present an international consensus of quality standards of care for children and adolescents with bronchiectasis based upon this guideline. The panel used a standardised approach that included a Delphi process with 201 respondents from the parents and patients’ survey, and 299 physicians (across 54 countries) who care for children and adolescents with bronchiectasis. The seven quality standards of care statements developed by the panel address the current absence of quality standards for clinical care related to paediatric bronchiectasis. These internationally derived, clinician-, parent- and patient-informed, consensus-based quality standards statements can be used by parents and patients to access and advocate for quality care for their children and themselves, respectively. They can also be used by healthcare professionals to advocate for their patients, and by health services as a monitoring tool, to help optimise health outcomes.
