Cancer Informatics (Jan 2011)

Multicenter Breast Cancer Collaborative Registry

  • Simon Sherman,
  • Oleg Shats,
  • Elizabeth Fleissner,
  • George Bascom,
  • Kevin Yiee,
  • Mehmet Copur,
  • Kate Crow,
  • James Rooney,
  • Zubeena Mateen,
  • Marsha A. Ketcham,
  • Jianmin Feng,
  • Alexander Sherman,
  • Michael Gleason,
  • Leo Kinarsky,
  • Edibaldo Silva-Lopez,
  • James Edney,
  • Elizabeth Reed,
  • Ann Berger,
  • Kenneth Cowan

DOI
https://doi.org/10.4137/CIN.S7845
Journal volume & issue
Vol. 10

Abstract

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The Breast Cancer Collaborative Registry (BCCR) is a multicenter web-based system that efficiently collects and manages a variety of data on breast cancer (BC) patients and BC survivors. This registry is designed as a multi-tier web application that utilizes Java Servlet/JSP technology and has an Oracle 11g database as a back-end. The BCCR questionnaire has accommodated standards accepted in breast cancer research and healthcare. By harmonizing the controlled vocabulary with the NCI Thesaurus (NCIt) or Systematized Nomenclature of Medicine-Clinical Terms (SNOMED-CT), the BCCR provides a standardized approach to data collection and reporting. The BCCR has been recently certified by the National Cancer Institute's Center for Biomedical Informatics and Information Technology (NCI CBIIT) as a cancer Biomedical Informatics Grid (caBIG®) Bronze Compatible product. The BCCR is aimed at facilitating rapid and uniform collection of critical information and biological samples to be used in developing diagnostic, prevention, treatment, and survivorship strategies against breast cancer. Currently, seven cancer institutions are participating in the BCCR that contains data on almost 900 subjects (BC patients and survivors, as well as individuals at high risk of getting BC).