Parental self-efficacy managing a child’s medications and treatments: adaptation of a PROMIS measure

Abstract

Plain English Summary Self-efficacy, which is someone’s confidence in completing a task, is important for managing a chronic health condition. Knowing parents’ self-efficacy managing their children’s health conditions may be an important step in supporting their children’s health but no single measure is available for diverse sets of conditions. In this paper, we present the development of a new patient reported outcomes measure designed to assess self-efficacy of parents managing their child’s chronic and/or disabling conditions. We found that the measure is both acceptable and understandable to English and Spanish speakers and may be useful to proactively identify parents in need of additional supports at hospital discharge or at the time of a new diagnosis.

Keywords

• Self-efficacy
• Patient-reported outcome measure
• Children with special health care needs
• Children with medical complexity
• Children with disability