Emerging Infectious Diseases (Jul 2018)

Strengthening Global Public Health Surveillance through Data and Benefit Sharing

  • Michael Edelstein,
  • Lisa M. Lee,
  • Asha Herten-Crabb,
  • David L. Heymann,
  • David R. Harper

DOI
https://doi.org/10.3201/eid2407.151830
Journal volume & issue
Vol. 24, no. 7
pp. 1324 – 1330

Abstract

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Equitable sharing of public health surveillance data can help prevent or mitigate the effect of infectious diseases. Equitable data sharing includes working toward more equitable sharing of the public health benefits that data sharing brings and requires the engagement of those providing the data, those interpreting and using the data generated by others, those facilitating the data-sharing process, and those deriving and contributing to the benefit. An expert consultation conducted by Chatham House outlined 7 principles to encourage the process of equitable data sharing: 1) building trust; 2) articulating the value; 3) planning for data sharing; 4) achieving quality data; 5) understanding the legal context; 6) creating data-sharing agreements; and 7) monitoring and evaluation. Sharing of public health surveillance data is best done taking into account these principles, which will help to ensure data are shared optimally and ethically, while fulfilling stakeholder expectations and facilitating equitable distribution of benefits.

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