Navigating global collaboration: challenges faced by the international network on esophageal atresia

Frédéric Gottrand; Usha Krishnan; Anke Widenmann; Michaela Dellenmark Blom; Luigi Dall’Oglio; Rene Wijnen; Michiel van Wijk; JoAnne Fruithof; Daniel von Allmen; Tom Kovesi; Christophe Faure

doi:10.1186/s13023-024-03250-6

Orphanet Journal of Rare Diseases (Aug 2024)

Navigating global collaboration: challenges faced by the international network on esophageal atresia

Frédéric Gottrand,
Usha Krishnan,
Anke Widenmann,
Michaela Dellenmark Blom,
Luigi Dall’Oglio,
Rene Wijnen,
Michiel van Wijk,
JoAnne Fruithof,
Daniel von Allmen,
Tom Kovesi,
Christophe Faure

Affiliations

Frédéric Gottrand: Reference Center for Congenital Oesophageal Anomalies, Univ. Lille, CHU Lille
Usha Krishnan: Discipline of Pediatrics, School of Women’s and Children’s Health, Faculty of Medicine, University of New South Wales
Anke Widenmann: EAT, Federation of esophageal atresia and trachea-esophageal fistula
Michaela Dellenmark Blom: Department of Pediatrics, University of Gothenburg Institute of Clinical Sciences
Luigi Dall’Oglio: Digestive Endoscopy and Surgery Unit, Bambino Gesù Children’s Hospital, IRCCS Rome
Rene Wijnen: Department of Pediatric Surgery and Intensive Care Children, Erasmus MC Sophia Children’s Hospital
Michiel van Wijk: Department of Gastroenterology, Amsterdam UMC Location AMC
JoAnne Fruithof: EAT, Federation of esophageal atresia and trachea-esophageal fistula
Daniel von Allmen: Department of Pediatric Surgery and Surgical Services, Cincinnati Children’s Hospital Medical Center
Tom Kovesi: Children’s Hospital of Eastern Ontario, University of Ottawa
Christophe Faure: Department of Pediatrics, CHU Ste-Justine Research Centre, Université de Montréal

DOI: https://doi.org/10.1186/s13023-024-03250-6
Journal volume & issue: Vol. 19, no. 1
pp. 1 – 3

Abstract

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Abstract The International Network on Esophageal Atresia (INoEA) stands as a beacon of collaboration in addressing the complexities of this congenital condition on a global scale. The eleven board members, from various countries (USA, Canada, France, Australia, Italy, Sweden, Germany, and The Netherlands) and backgrounds (pediatric gastroenterology, pediatric surgery, pediatric pulmonology, nursing, and parents) met in a face-to-face symposium in Lille in November 2023, to identify challenges and solutions for improving global collaboration of the network.

Published in Orphanet Journal of Rare Diseases

ISSN: 1750-1172 (Online)
Publisher: BMC
Country of publisher: United Kingdom
LCC subjects: Medicine
Website: https://ojrd.biomedcentral.com

About the journal

Abstract

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