Научно-практическая ревматология (Dec 2016)
RHEUMATOID ARTHRITIS IN THE RUSSIAN FEDERATION ACCORDING TO RUSSIAN ARTHRITIS REGISTRY DATA (COMMUNICATION I)
- E. L. Nasonov,
- D. E. Karateev,
- A. M. Satybaldyev,
- E. L. Luchikhina,
- G. V. Lukina,
- M. V. Nikolenko,
- V. A. Bilinskaya,
- M. E. Dmitrieva,
- L. A. Bogoderova,
- N. A. Lapkina,
- N. V. Chichasova,
- V. N. Sorotskaya,
- D. I. Abdulganieva,
- R. G. Mukhina,
- G. R. Gafurov,
- V. I. Mazurov,
- D. S. Chakieva,
- R. R. Samigullina,
- E. G. Kuznetsova,
- N. V. Demidova,
- N. Yu. Nikishina,
- E. V. Fedorenko,
- E. V. Gerasimova,
- E. A. Zlepko,
- N. V. Muravyeva,
- G. I. Gridneva,
- O. A. Rumyantseva,
- K. A. Kasumova,
- A. V. Alekseeva,
- N. S. Shornikova,
- S. A. Vladimirov,
- D. A. Gukasyan,
- L. N. Tyurina,
- L. N. Denisov,
- T. G. Oskilko,
- E. A. Koshkarova
Affiliations
- E. L. Nasonov
- V.A. Nasonova Research Institute of Rheumatology
- D. E. Karateev
- V.A. Nasonova Research Institute of Rheumatology
- A. M. Satybaldyev
- V.A. Nasonova Research Institute of Rheumatology
- E. L. Luchikhina
- V.A. Nasonova Research Institute of Rheumatology
- G. V. Lukina
- V.A. Nasonova Research Institute of Rheumatology, Moscow Clinical Research-and-Practical Center, Moscow Healthcare Department
- M. V. Nikolenko
- N.I. Pirogov City Clinical Hospital One
- V. A. Bilinskaya
- N.I. Pirogov City Clinical Hospital One
- M. E. Dmitrieva
- N.I. Pirogov City Clinical Hospital One
- L. A. Bogoderova
- State Novosibirsk Regional Clinical Hospital
- N. A. Lapkina
- Yaroslavl State Medical University, Ministry of Health of Russia
- N. V. Chichasova
- I.M. Sechenov First Moscow State Medical University, Ministry of Health of Russia
- V. N. Sorotskaya
- Tula Regional Medical Information Analysis Center
- D. I. Abdulganieva
- Kazan State Medical University
- R. G. Mukhina
- City Clinical Hospital Seven
- G. R. Gafurov
- City Clinical Hospital Seven
- V. I. Mazurov
- I.I. Mechnikov North-Western State Medical University, Ministry of Health of Russia
- D. S. Chakieva
- I.I. Mechnikov North-Western State Medical University, Ministry of Health of Russia
- R. R. Samigullina
- I.I. Mechnikov North-Western State Medical University, Ministry of Health of Russia
- E. G. Kuznetsova
- Regional Clinical Hospital One
- N. V. Demidova
- V.A. Nasonova Research Institute of Rheumatology
- N. Yu. Nikishina
- V.A. Nasonova Research Institute of Rheumatology
- E. V. Fedorenko
- V.A. Nasonova Research Institute of Rheumatology
- E. V. Gerasimova
- V.A. Nasonova Research Institute of Rheumatology
- E. A. Zlepko
- V.A. Nasonova Research Institute of Rheumatology
- N. V. Muravyeva
- V.A. Nasonova Research Institute of Rheumatology
- G. I. Gridneva
- V.A. Nasonova Research Institute of Rheumatology
- O. A. Rumyantseva
- V.A. Nasonova Research Institute of Rheumatology
- K. A. Kasumova
- V.A. Nasonova Research Institute of Rheumatology
- A. V. Alekseeva
- V.A. Nasonova Research Institute of Rheumatology
- N. S. Shornikova
- V.A. Nasonova Research Institute of Rheumatology
- S. A. Vladimirov
- V.A. Nasonova Research Institute of Rheumatology
- D. A. Gukasyan
- V.A. Nasonova Research Institute of Rheumatology
- L. N. Tyurina
- V.A. Nasonova Research Institute of Rheumatology
- L. N. Denisov
- V.A. Nasonova Research Institute of Rheumatology
- T. G. Oskilko
- V.A. Nasonova Research Institute of Rheumatology
- E. A. Koshkarova
- Aston Consulting
- DOI
- https://doi.org/10.14412/1995-4484-2016-50-62
- Journal volume & issue
-
Vol. 54,
no. 0
pp. 50 – 62
Abstract
The paper presents the materials of the Russian Arthritis Registry (OREL) that includes 3276 patients from 11 Russian Federation's largest research-and-practical centers situated in Moscow, Saint Petersburg, Novosibirsk, Kazan, Tula, Yaroslavl, Tyumen. It discusses the main goals of setting up registries, compares the results of an analysis of the data available in the Russian Registry OREL and registries of European countries and the USA. The findings suggest that there is non-uniform information on clinical, laboratory, and instrumental parameters in the national registers of a number of European countries and the USA. According to its basic characteristics, the Russian Registry OREL compares favorably with a number of other registries in the completeness of data collection, which allows a general idea of rheumatoidarthritis (RA) patients in Russia. For further development of the OREL Registry, it is necessary to concentrate our attention on the following main areas: to improve the quality of filling out documents; to follow-up patients receiving different RA therapy regimens according to the guidelines of the Association of Rheumatologists of Russia for the treatment of RA; to conduct in-depth studies of comorbidity, primarily depressive disorders; to analyze adverse reactions that make RA therapy difficult; to actively use modules for patients' self-rating of their condition; to develop nursing care, etc.
Keywords
