Rev Rene (Jul 2020)

Preparation for the care of children with chronic diseases: the perception of caregivers

  • Rebecca Camurça Torquato,
  • Giselle Pereira Rovere,
  • Mardênia Gomes Vasconcelos Pitombeira,
  • Aline de Souza Pereira,
  • Luciana Kelly Ximenes dos Santos

DOI
https://doi.org/10.15253/2175-6783.20202143870
Journal volume & issue
Vol. 21
p. e43870

Abstract

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Objective: to describe the caregivers' perception of preparation to care for children with chronic diseases. Methods: qualitative research, carried out with nine caregivers in a home transition unit in a tertiary hospital. Semi-structured interviews were used to obtain the data, and the content analysis technique was used to describe the results. Results: with the qualitative material analysis process, the main perceptions of the reported care were obtained: Knowing the Care Unit; Training, learning and guidance and Difficulties faced. Conclusion: the preparation for the care of children with chronic diseases is complex and was perceived as a fundamental step towards leaving hospital, requiring from these caregivers donation and effort to face this process.

Keywords