P873: “If you look for a problem, you’ll find one”: A qualitative study to understand why parents/adult patients decline secondary findings

• Abigail Hansen,
• Stephanie Luca,
• Olivia Moran,
• Riyana Babul-Hirji,
• Joyce Yan,
• Katharine Fooks,
• Viji Venkataramanan,
• Wendy Ungar,
• Robin Hayeems,
• Secondary Findings Study Team,
• Elise Poole,
• Daniel Assamad,
• Pooja Banglorewala,
• Lydia Vermeer,
• Christian Marshall,
• Meredith Gillespie,
• Anna Szuto,
• Caitlin Chisholm,
• James Stavropoulos,
• Lijia Huang,
• Olga Jarinova,
• Lynette Lau,
• Whiwon Lee,
• Lauren Badalato,
• Tugce Balci,
• Lauren Chad,
• Cara Inglese,
• Virginie Ladouceur,
• Michael Mackley,
• Chantal Morel,
• Julie Richer,
• Mark Tarnopolsky,
• Anita Villani,
• Laura Zahavich,
• Sarah Sawyer,
• Roberto Mendoza-Londono,
• Martin Somerville,
• Kym Boycott,
• Wendy Ungar,
• Robin Hayeems

Affiliations

Abigail Hansen

Program in Child Health Evaluative Sciences, Hospital for Sick Children Research Institute, Toronto, ON, Canada, Department of Biology, McMaster University, Hamilton, ON, Canada

Stephanie Luca

Program in Child Health Evaluative Sciences, Hospital for Sick Children Research Institute, Toronto, ON, Canada

Olivia Moran

Division of Clinical and Metabolic Genetics, Hospital for Sick Children, Toronto, ON, Canada

Riyana Babul-Hirji

Division of Clinical and Metabolic Genetics, Hospital for Sick Children, Toronto, ON, Canada

Joyce Yan

Program in Child Health Evaluative Sciences, Hospital for Sick Children Research Institute, Toronto, ON, Canada

Katharine Fooks

Program in Child Health Evaluative Sciences, Hospital for Sick Children Research Institute, Toronto, ON, Canada

Viji Venkataramanan

Program in Child Health Evaluative Sciences, Hospital for Sick Children Research Institute, Toronto, ON, Canada

Wendy Ungar

Program in Child Health Evaluative Sciences, Hospital for Sick Children Research Institute, Toronto, ON, Canada, Institute for Health Policy, Management, and Evaluation, University of Toronto, Toronto, ON, Canada

Robin Hayeems

Program in Child Health Evaluative Sciences, Hospital for Sick Children Research Institute, Toronto, ON, Canada, Department of Molecular Genetics, University of Toronto, ON, Canada

Secondary Findings Study Team

N/A

Elise Poole

The Hospital for Sick Children, University of Toronto

Daniel Assamad

The Hospital for Sick Children, University of Toronto

Pooja Banglorewala

The Hospital for Sick Children, University of Toronto

Lydia Vermeer

Sunnybrook Hospital

Christian Marshall

The Hospital for Sick Children, University of Toronto

Meredith Gillespie

Children's Hospital of Eastern Ontario, University of Ottawa

Anna Szuto

The Hospital for Sick Children, University of Toronto

Caitlin Chisholm

Children's Hospital of Eastern Ontario

James Stavropoulos

The Hospital for Sick Children, University of Toronto

Lijia Huang

London Health Sciences Centre

Olga Jarinova

Children's Hospital of Eastern Ontario

Lynette Lau

The Hospital for Sick Children, University of Toronto

Whiwon Lee

The Hospital for Sick Children, University of Toronto

Lauren Badalato

Kington Health Sciences Centre, Queens University

Tugce Balci

London Health Sciences Centre

Lauren Chad

The Hospital for Sick Children, University of Toronto

Cara Inglese

The Hospital for Sick Children, University of Toronto

Virginie Ladouceur

The Hospital for Sick Children, University of Toronto

Michael Mackley

The Hospital for Sick Children, University of Toronto

Chantal Morel

University of Toronto

Julie Richer

University of Ottawa

Mark Tarnopolsky

McMaster University

Anita Villani

The Hospital for Sick Children, University of Toronto

Laura Zahavich

The Hospital for Sick Children, University of Toronto

Sarah Sawyer

Children's Hospital of Eastern Ontario

Roberto Mendoza-Londono

The Hospital for Sick Children, University of Toronto

Martin Somerville

The Hospital for Sick Children, University of Toronto

Kym Boycott

Kington Health Sciences Centre, Queens University

Wendy Ungar

The Hospital for Sick Children, University of Toronto

Robin Hayeems

The Hospital for Sick Children, University of Toronto