Update and European consensus on a patient-centered core outcome set for multiple myeloma in clinical practice and research

• Simone Oerlemans,
• Belle H. de Rooij,
• Christine Bennink,
• Lars Bullinger,
• Annemiek Broijl,
• Mattia D’Agostino,
• Edward Laane,
• Maria Teresa Lupo-Stanghellini,
• Aurore Perrot,
• Ruth Wester,
• Viorica Cursaru,
• Hans Scheurer,
• Jan Vesseur,
• Mehul Dalal,
• Rohini Sen,
• Tanja Stamm,
• Heinz Ludwig,
• Pieter Sonneveld

Affiliations

Simone Oerlemans

Department of Research and development, Netherlands Comprehensive Cancer Organisation, Utrecht

Belle H. de Rooij

Department of Research and development, Netherlands Comprehensive Cancer Organisation, Utrecht, the Netherlands; CoRPS - Center of Research on Psychology in Somatic diseases, Department of Medical and Clinical Psychology, Tilburg University, Tilburg

Christine Bennink

Department of Strategy, Amphia, Breda, the Netherlands; Department of Haematology, Erasmus Medical Center Cancer Institute, Rotterdam

Lars Bullinger

Department of Hematology, Oncology and Cancer Immunology, Campus Virchow, Charité – Universitätsmedizin Berlin, corporate member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Germany

Annemiek Broijl

Department of Haematology, Erasmus Medical Center Cancer Institute, Rotterdam

Mattia D’Agostino

Myeloma Unit, Division of Hematology, University of Torino, Azienda Ospedaliero-Universitaria Città della Salute e della Scienza di Torino, Torino, Italy

Edward Laane

Hematology-Oncology Clinic; University of Tartu, Tartu, Estonia

Maria Teresa Lupo-Stanghellini

Hematology and Bone Marrow Transplantation Unit, IRCCS San Raffaele Scientific Institute, Milan, Italy

Aurore Perrot

Hematology Department, Cancer University Institute Oncopole, Toulouse

Ruth Wester

Department of Haematology, Erasmus Medical Center Cancer Institute, Rotterdam

Viorica Cursaru

European Myeloma Network Romania

Hans Scheurer

Myeloma Patients Europe

Jan Vesseur

Myeloma Patients Europe

Mehul Dalal

Takeda Development Center Americas, Inc., Lexington, MA

Rohini Sen

Abbvie

Tanja Stamm

Institute of Outcomes Research, Center for Medical Data Science, Medical University of Vienna, Austria and Ludwig Boltzmann Institute for Arthritis and Rehabilitation, Vienna, Austria

Heinz Ludwig

Wilhelminen Cancer Research Institute, First Department of Medicine, Center for Oncology, Hematology, and Palliative Care, Clinic Ottakring, Vienna, Austria

Pieter Sonneveld

Department of Haematology, Erasmus Medical Center Cancer Institute, Rotterdam