Frontiers in Endocrinology (Aug 2020)

Collaboration Around Rare Bone Diseases Leads to the Unique Organizational Incentive of the Amsterdam Bone Center

  • Elisabeth M. W. Eekhoff,
  • Dimitra Micha,
  • Tymour Forouzanfar,
  • Teun J. de Vries,
  • J. Coen Netelenbos,
  • Jenneke Klein-Nulend,
  • Jack J. W. A. van Loon,
  • Wouter D. Lubbers,
  • Lothar Schwarte,
  • Patrick Schober,
  • Pieter G. H. M. Raijmakers,
  • Bernd P. Teunissen,
  • Pim de Graaf,
  • Adriaan A. Lammertsma,
  • Maqsood M. Yaqub,
  • Esmée Botman,
  • Sanne Treurniet,
  • Bernard J. Smilde,
  • Arend Bökenkamp,
  • Anco Boonstra,
  • Otto Kamp,
  • Jakko A. Nieuwenhuijzen,
  • Marieke C. Visser,
  • Hans J. C. Baayen,
  • Max Dahele,
  • Guus A. M. Eeckhout,
  • Thadé P. M. Goderie,
  • Cas Smits,
  • Marjolijn Gilijamse,
  • K. Hakki Karagozoglu,
  • Paul van de Valk,
  • Chris Dickhoff,
  • Annette C. Moll,
  • Frank F. D. Verbraak,
  • Katie K. R. Curro-Tafili,
  • Ebba A. E. Ghyczy,
  • Thomas Rustemeyer,
  • Peeroz Saeed,
  • Alessandra Maugeri,
  • Gerard Pals,
  • Angela Ridwan-Pramana,
  • Esther Pekel,
  • Ton Schoenmaker,
  • Willem Lems,
  • Henri A. H. Winters,
  • Matthijs Botman,
  • Georgios F. Giannakópoulos,
  • Peter Koolwijk,
  • Jeroen J. W. M. Janssen,
  • Peter Kloen,
  • Nathalie Bravenboer,
  • Jan Maerten Smit,
  • Marco N. Helder

DOI
https://doi.org/10.3389/fendo.2020.00481
Journal volume & issue
Vol. 11

Abstract

Read online

In the field of rare bone diseases in particular, a broad care team of specialists embedded in multidisciplinary clinical and research environment is essential to generate new therapeutic solutions and approaches to care. Collaboration among clinical and research departments within a University Medical Center is often difficult to establish, and may be hindered by competition and non-equivalent cooperation inherent in a hierarchical structure. Here we describe the “collaborative organizational model” of the Amsterdam Bone Center (ABC), which emerged from and benefited the rare bone disease team. This team is often confronted with pathologically complex and under-investigated diseases. We describe the benefits of this model that still guarantees the autonomy of each team member, but combines and focuses our collective expertise on a clear shared goal, enabling us to capture synergistic and innovative opportunities for the patient, while avoiding self-interest and possible harmful competition.

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