Pediatric Rheumatology Online Journal (Jan 2024)
Towards a standardized program of transitional care for adolescents with juvenile idiopathic arthritis for Turkey: a national survey study
- Betül Sözeri,
- Nihal Şahin,
- Ceyhun Açarı,
- Pinar Ozge Avar Aydın,
- Ozge Baba,
- Esra Bağlan,
- Sevcan Bakkaloğlu,
- Sibel Bakırcı,
- Yelda Bilginer,
- Burcu Yücel Bozkaya,
- Şengül Çağlayan,
- Mustafa Çakan,
- Figen Çakmak,
- Taner Coşkuner,
- Ferhat Demir,
- Fatma Gül Demirkan,
- Şeyda Doğantan,
- Hatice Adıgüzel Dündar,
- Emine Duygu Ersözlü,
- Sercan Gücenmez,
- Oğuz Gürler,
- Rana İşgüder,
- Adem Küçük,
- Mukaddes Kalyoncu,
- Levent Kılıç,
- Sara Şebnem Kılıç,
- Hakan Kısaoğlu,
- Ayşenur Paç Kısaarslan,
- Zehra Kızıldağ,
- Duygu Kurtuluş,
- Semanur Özdel,
- Kübra Öztürk,
- Pelin Şenol,
- Ayşe Tanatar,
- Sema Nur Taşkın,
- Fatma Tuncer Kuru,
- Serkan Türkuçar,
- Kadir Ulu,
- Erbil Ünsal,
- Ayten Yazıcı,
- Deniz Gezgin Yıldırım,
- Selçuk Yüksel,
- Özgür Kasapçopur,
- Seza Özen,
- Nuray Aktay Ayaz,
- Hafize Emine Sönmez
Affiliations
- Betül Sözeri
- Department of Pediatric Rheumatology, University of Health Sciences, Umraniye Research and Training Hospital
- Nihal Şahin
- Department of Pediatric Rheumatology, Faculty of Medicine, Kocaeli University
- Ceyhun Açarı
- Department of Pediatric Rheumatology, Faculty of Medicine, Inönü University
- Pinar Ozge Avar Aydın
- Department of Pediatric Rheumatology, Tekirdağ State Hospital
- Ozge Baba
- Department of Pediatric Rheumatology, Karadeniz Technical University Faculty of Medicine
- Esra Bağlan
- Department of Pediatric Rheumatology, Etlik State Hospital
- Sevcan Bakkaloğlu
- Department of Pediatric Rheumatology, Faculty of Medicine, Gazi University
- Sibel Bakırcı
- Department of Rheumatology, Antalya State Hospital
- Yelda Bilginer
- Department of Pediatric Rheumatology, Faculty of Medicine, Hacettepe University
- Burcu Yücel Bozkaya
- Department of Pediatric Rheumatology, Samsun Research and Training Hospital
- Şengül Çağlayan
- Department of Pediatric Rheumatology, University of Health Sciences, Umraniye Research and Training Hospital
- Mustafa Çakan
- Department of Pediatric Rheumatology, Zeynep Kamil Research and Training Hospital
- Figen Çakmak
- Department of Pediatric Rheumatology, Başakşehir Çam and Sakura State Hospital
- Taner Coşkuner
- Department of Pediatric Rheumatology, University of Health Sciences, Umraniye Research and Training Hospital
- Ferhat Demir
- Department of Pediatric Rheumatology, Acıbadem Hospital
- Fatma Gül Demirkan
- Department of Pediatric Rheumatology, Istanbul Faculty of Medicine, Istanbul University
- Şeyda Doğantan
- Department of Pediatric Rheumatology, Mersin City Hospital
- Hatice Adıgüzel Dündar
- Department of Pediatric Rheumatology, Behçet Uz Research and Training Hospital
- Emine Duygu Ersözlü
- Department of Rheumatology, Adana City Research and Training Hospital
- Sercan Gücenmez
- Department of Rheumatology, Izmir Atatürk Research and Training Hospital
- Oğuz Gürler
- Department of Rheumatology, Medikal Park Hospital
- Rana İşgüder
- Department of Pediatric Rheumatology, Faculty of Medicine, Dokuz Eylül University
- Adem Küçük
- Department of Rheumatology, Faculty of Medicine, Konya Selçuk University
- Mukaddes Kalyoncu
- Department of Pediatric Rheumatology, Karadeniz Technical University Faculty of Medicine
- Levent Kılıç
- Department of Rheumatology, Faculty of Medicine, Hacettepe University
- Sara Şebnem Kılıç
- Department of Pediatric Rheumatology, Faculty of Medicine, Uludağ University
- Hakan Kısaoğlu
- Department of Pediatric Rheumatology, Kayseri City Hospital
- Ayşenur Paç Kısaarslan
- Department of Pediatric Rheumatology, Faculty of Medicine, Erciyes University
- Zehra Kızıldağ
- Department of Pediatric Rheumatology, Faculty of Medicine, Dokuz Eylül University
- Duygu Kurtuluş
- Department of Physical Therapy and Rehabilitation, Umraniye Training and Research Hospital
- Semanur Özdel
- Department of Pediatric Rheumatology, Etlik State Hospital
- Kübra Öztürk
- Department of Pediatric Rheumatology, Göztepe Research and Training Hospital
- Pelin Şenol
- Department of Pediatric Rheumatology, Faculty of Medicine, Gazi University
- Ayşe Tanatar
- Department of Pediatric Rheumatology, Istanbul Faculty of Medicine, Istanbul University
- Sema Nur Taşkın
- Department of Pediatric Rheumatology, Eskişehir City Hospital
- Fatma Tuncer Kuru
- Department of Rheumatology, Osmaniye State Hospital
- Serkan Türkuçar
- Department of Pediatric Rheumatology, Faculty of Medicine, Pamukkale University
- Kadir Ulu
- Department of Pediatric Rheumatology, University of Health Sciences, Umraniye Research and Training Hospital
- Erbil Ünsal
- Department of Pediatric Rheumatology, Faculty of Medicine, Dokuz Eylül University
- Ayten Yazıcı
- Department of Rheumatology, Faculty of Medicine, Kocaeli University
- Deniz Gezgin Yıldırım
- Department of Pediatric Rheumatology, Faculty of Medicine, Gazi University
- Selçuk Yüksel
- Department of Pediatric Rheumatology, Faculty of Medicine, Onsekiz Mart University
- Özgür Kasapçopur
- Department of Pediatric Rheumatology, Istanbul University-Cerrahpaşa, Cerrahpaşa Medical School
- Seza Özen
- Department of Pediatric Rheumatology, Faculty of Medicine, Hacettepe University
- Nuray Aktay Ayaz
- Department of Pediatric Rheumatology, Istanbul Faculty of Medicine, Istanbul University
- Hafize Emine Sönmez
- Department of Pediatric Rheumatology, Faculty of Medicine, Kocaeli University
- DOI
- https://doi.org/10.1186/s12969-023-00943-3
- Journal volume & issue
-
Vol. 22,
no. 1
pp. 1 – 8
Abstract
Abstract Background Juvenile idiopathic arthritis (JIA) is a prevalent childhood chronic arthritis, often persisting into adulthood. Effective transitional care becomes crucial as these patients transition from pediatric to adult healthcare systems. Despite the concept of transitional care being recognized, its real-world implementation remains inadequately explored. This study aims to evaluate the thoughts and practices of healthcare providers regarding transitional care for JIA patients. Methods A cross-sectional survey was conducted among pediatric and adult rheumatologists in Turkey. Based on the American Academy of Pediatrics’ six core elements of transitional care, the survey included 86 questions. The respondents’ demographic data, attitudes towards transitional care, and practical implementation were assessed. Results The survey included 48 rheumatologists, with 43.7% having a transition clinic. The main barriers to establishing transition programs were the absence of adult rheumatologists, lack of time, and financial constraints. Only 23.8% had a multidisciplinary team for transition care. Participants agreed on the importance of coordination and cooperation between pediatric and adult healthcare services. The timing of the transition process varied, with no consensus on when to initiate or complete it. Participants advocated for validated questionnaires adapted to local conditions to assess transition readiness. Conclusions The study sheds light on the challenges and perspectives surrounding transitional care for JIA patients in Turkey. Despite recognized needs and intentions, practical implementation remains limited due to various barriers. Cultural factors and resource constraints affect the transition process. While acknowledging the existing shortcomings, the research serves as a ground for further efforts to improve transitional care and ensure better outcomes for JIA patients transitioning into adulthood.
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