P114: Use of population data to empower patient organizations and improve advocacy for rare disease therapeutics

• Samantha Baxter,
• Moriel Singer-Berk,
• Kathryn Russell,
• Emily Groopman,
• Nicholas Watts,
• Michael Wilson,
• Jordan Wood,
• Heidi Rehm,
• Anne O'Donnell-Luria

Affiliations

Samantha Baxter

Broad Institute of MIT and Harvard

Moriel Singer-Berk

Broad Institute of MIT and Harvard

Kathryn Russell

Broad Institute of MIT and Harvard

Emily Groopman

Broad Institute of MIT and Harvard

Nicholas Watts

Broad Institute of MIT and Harvard

Michael Wilson

Broad Institute of MIT and Harvard

Jordan Wood

Broad Institute of MIT and Harvard

Heidi Rehm

Broad Institute of MIT and Harvard, Massachusetts General Hospital

Anne O'Donnell-Luria

Broad Institute of MIT and Harvard, Massachusetts General Hospital, Boston Children’s Hospital