Patient Preference and Adherence (Aug 2020)
Proposal for a Framework to Enable Elicitation of Preferences for Clients in Need of Long-Term Care
Abstract
Catharina M van Leersum,1 Ben van Steenkiste,1 Albine Moser,1,2 Judith RLM Wolf,3 Trudy van der Weijden1 1Department of Family Medicine, CAPHRI School for Public Health and Primary Care, Maastricht University Medical Center, Maastricht, the Netherlands; 2Research Center for Autonomy and Participation of Persons with a Chronic Illness, Zuyd University of Applied Sciences, Heerlen, the Netherlands; 3Impuls-Netherlands Center for Social Care Research, Radboud Institute for Health Sciences, Radboud University Medical Center, Nijmegen, the NetherlandsCorrespondence: Catharina M van LeersumDepartment of Family Medicine, CAPHRI School for Public Health and Primary Care, Maastricht University Medical Center, Peter Debyeplein 1 (Room 3.022), Maastricht 6229 HA, the NetherlandsTel +31 43 388 2295Email [email protected]: Collaborative deliberation comprises personal engagement, recognition of alternative actions, comparative learning, preference elicitation, and preference integration. Collaborative deliberation may be improved by assisting preference elicitation during shared decision-making. This study proposes a framework for preference elicitation to facilitate collaborative deliberation in long-term care consultations.Methods: First, a literature overview was conducted comprising current models for the elicitation of preferences in health and social care settings. The models were reviewed and compared. Second, qualitative research was applied to explore those issues that matter most to clients in long-term care. Data were collected from clients in long-term care, comprising 16 interviews, 3 focus groups, 79 client records, and 200 online client reports. The qualitative analysis followed a deductive approach. The results of the literature overview and qualitative research were combined.Results: Based on the literature overview, five overarching domains of preferences were described: “Health”, “Daily life”, “Family and friends”, ”Living conditions”, and “Finances”. The credibility of these domains was confirmed by qualitative data analysis. During interviews, clients addressed issues that matter in their lives, including a “click” with their care professional, safety, contact with loved ones, and assistance with daily structure and activities. These data were used to determine the content of the domains.Conclusion: A framework for preference elicitation in long-term care is proposed. This framework could be useful for clients and professionals in preference elicitation during collaborative deliberation.Keywords: preference elicitation, long-term care, patient preferences, collaborative deliberation, decision support
