Hope for the best, but prepare for the worst: Social media posted by participants in stem cell clinical trials

Abstract

This article examines the influence of social media posts on clinical trials involving stem cell–based interventions. Based on the literature review, we identified three potential risks associated with social media posts regarding clinical trials that involve stem cell–based interventions: (1) threats to scientific validity, (2) amplification of excessive expectations, and (3) breaches of confidentiality. Additionally, preliminary recommendations are provided to safeguard the value of stem cell clinical trials for future patients in the age of social media. Our approach aims to safeguard the well-being of forthcoming participants and ensure the scientific validity of stem cell research, as well as possibly aid in the further development of shared guidelines for posting stem cell clinical trial information on social media platforms.

Keywords

• Stem cell clinical trial
• Social media
• Scientific validity
• Excessive expectations
• Breaches of confidentiality