A web-based educational therapy intervention associated with physical exercise to promote health in fibromyalgia in Brazil: the Amigos De Fibro (Fibro Friends) study protocol
Mateus Dias Antunes,
Felipe Cayres Nogueira da Rocha Loures,
Ingred Merllin Batista de Souza,
Ariela Torres Cruz,
Priscila de Oliveira Januário,
Mara Maria Lisboa Santana Pinheiro,
Ana Carolina Basso Schmitt,
Elisa Frutos-Bernal,
Ana María Martín-Nogueras,
Amélia Pasqual Marques
Affiliations
Mateus Dias Antunes
Program in Rehabilitation Sciences, Department of Physiotherapy, Speech-Language Pathology and Audiology, and Occupational Therapy, Faculty of Medicine, University of São Paulo
Felipe Cayres Nogueira da Rocha Loures
Clínica de Reumatismo Rocha Loures
Ingred Merllin Batista de Souza
Program in Rehabilitation Sciences, Department of Physiotherapy, Speech-Language Pathology and Audiology, and Occupational Therapy, Faculty of Medicine, University of São Paulo
Ariela Torres Cruz
Program in Rehabilitation Sciences, Department of Physiotherapy, Speech-Language Pathology and Audiology, and Occupational Therapy, Faculty of Medicine, University of São Paulo
Priscila de Oliveira Januário
Program in Rehabilitation Sciences, Department of Physiotherapy, Speech-Language Pathology and Audiology, and Occupational Therapy, Faculty of Medicine, University of São Paulo
Mara Maria Lisboa Santana Pinheiro
Program in Rehabilitation Sciences, Department of Physiotherapy, Speech-Language Pathology and Audiology, and Occupational Therapy, Faculty of Medicine, University of São Paulo
Ana Carolina Basso Schmitt
Program in Rehabilitation Sciences, Department of Physiotherapy, Speech-Language Pathology and Audiology, and Occupational Therapy, Faculty of Medicine, University of São Paulo
Elisa Frutos-Bernal
Department of Statistics, Faculty of Medicine, University of Salamanca
Ana María Martín-Nogueras
Faculty of Nursing and Physiotherapy, University of Salamanca
Amélia Pasqual Marques
Program in Rehabilitation Sciences, Department of Physiotherapy, Speech-Language Pathology and Audiology, and Occupational Therapy, Faculty of Medicine, University of São Paulo
Abstract Background Health education is one of the main items to enable health promotion to patients with fibromyalgia. The objective of the study “Amigos de Fibro (Fibro Friends)” is to evaluate the impact of an educational intervention associated with physical exercise based on the web in promoting health and quality of life of patients with fibromyalgia in Brazil. Methods A study with a randomized controlled trial approach will be carried out. The sample will consist of 24 participants, divided into two groups, with 12 individuals each. The experimental group will participate in meetings with lectures, debates, conversation rounds and exercises by a multidisciplinary team. Physical exercises will also be performed in an online environment. On the other hand, the control group will receive an e-book of education and self-care. Primary outcomes will be quality of life. The secondary outcomes will be sociodemographic and health profile, pain intensity, sleep quality, self-care agency, usage and costs of health and social care services, viability of the program and program participation. In addition, a qualitative evaluation process will be carried out with the participants. After the intervention, the data of both groups will be collected again, as well as after 3, 6, and 12 months to verify the effect and the maintenance of the intervention. Discussion The results will provide data for studies to consider the use of this tool in the future by professionals working in the field of rheumatology. Trial registration The protocol was registered in the Brazilian Registry of Clinical Trials RBR-3rh759 ( https://trialsearch.who.int/Trial2.aspx?TrialID=RBR-3rh759 ). Date of registration: 07/02/2020].
