Co-Designing Digital Technologies for Improving Clinical Care in People with Parkinson’s Disease: What Did We Learn?
Mariana H. G. Monje,
Sylvie Grosjean,
Martin Srp,
Laura Antunes,
Raquel Bouça-Machado,
Ricardo Cacho,
Sergio Domínguez,
John Inocentes,
Timothy Lynch,
Argyri Tsakanika,
Dimitrios Fotiadis,
George Rigas,
Evžen Růžička,
Joaquim Ferreira,
Angelo Antonini,
Norberto Malpica,
Tiago Mestre,
Álvaro Sánchez-Ferro,
iCARE-PD Consortium
Affiliations
Mariana H. G. Monje
HM CINAC, Hospital Universitario HM Puerta del Sur, Universidad CEU-San Pablo, 28968 Madrid, Spain
Sylvie Grosjean
Department of Communication, Com&Tech Innovations Lab (CTI-Lab), University of Ottawa, Ottawa, ON K1N 6N5, Canada
Martin Srp
Department of Neurology and Centre of Clinical Neuroscience, First Faculty of Medicine, Charles University and General University Hospital, 128 21 Prague, Czech Republic
Laura Antunes
CNS—Campus Neurológico, 28933 Torres Vedras, Portugal
Raquel Bouça-Machado
CNS—Campus Neurológico, 28933 Torres Vedras, Portugal
Ricardo Cacho
CNS—Campus Neurológico, 28933 Torres Vedras, Portugal
Sergio Domínguez
LAIMBIO, Laboratorio de Análisis de Imagen Médica y Biometría, Universidad Rey Juan Carlos, 2560-280 Madrid, Spain
John Inocentes
Dublin Neurological Institute, Mater Misericordiae University Hospital, D07 W7XF Dublin, Ireland
Timothy Lynch
Dublin Neurological Institute, Mater Misericordiae University Hospital, D07 W7XF Dublin, Ireland
Argyri Tsakanika
PD Neurotechnology, 15451 Athens, Greece
Dimitrios Fotiadis
PD Neurotechnology, 15451 Athens, Greece
George Rigas
PD Neurotechnology, 15451 Athens, Greece
Evžen Růžička
Department of Neurology and Centre of Clinical Neuroscience, First Faculty of Medicine, Charles University and General University Hospital, 128 21 Prague, Czech Republic
Joaquim Ferreira
CNS—Campus Neurológico, 28933 Torres Vedras, Portugal
Angelo Antonini
Parkinson and Movement Disorders Unit, Department of Neurosciences (DNS), Padova University, 35131 Padova, Italy
Norberto Malpica
LAIMBIO, Laboratorio de Análisis de Imagen Médica y Biometría, Universidad Rey Juan Carlos, 2560-280 Madrid, Spain
Tiago Mestre
Parkinson’s Disease and Movement Disorders Center, Division of Neurology, Department of Medicine, The Ottawa Hospital Research Institute, The University of Ottawa Brain and Research Institute, Ottawa, ON 60611, Canada
Álvaro Sánchez-Ferro
HM CINAC, Hospital Universitario HM Puerta del Sur, Universidad CEU-San Pablo, 28968 Madrid, Spain
The healthcare model is shifting towards integrated care approaches. This new model requires patients to be more closely involved. The iCARE-PD project aims to address this need by developing a technology-enabled, home-based, and community-centered integrated care paradigm. A central part of this project is the codesign process of the model of care, exemplified by the active participation of patients in the design and iterative evaluation of three sensor-based technological solutions. We proposed a codesign methodology used for testing the usability and acceptability of these digital technologies and present initial results for one of them, MooVeo. Our results show the usefulness of this approach in testing the usability and acceptability as well as the opportunity to incorporate patients’ feedback into the development. This initiative will hopefully help other groups incorporate a similar codesign approach and develop tools that are well adapted to patients’ and care teams’ needs.
