Health Expectations (Aug 2023)

A qualitative study exploring the benefits of involving young people in mental health research

  • Rebecca Watson,
  • Lowrie Burgess,
  • Elise Sellars,
  • Jodie Crooks,
  • Rose McGowan,
  • James Diffey,
  • Georgia Naughton,
  • Rebekah Carrington,
  • Cassie Lovelock,
  • Rachel Temple,
  • Cathy Creswell,
  • Christina McMellon

DOI
https://doi.org/10.1111/hex.13722
Journal volume & issue
Vol. 26, no. 4
pp. 1491 – 1504

Abstract

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Abstract Introduction It is increasingly accepted that young people need to be centrally involved in research on issues that affect them. The aim of this study was to explore young people's perceptions of the benefits for them of being involved in mental health research and the processes that enabled these benefits. Methods Qualitative interviews were conducted by co‐researchers (young people with lived experience and/or interest in mental health) with 13 young people (aged 13–24 years) who had experience of being involved in mental health research when they were between 11 and 16 years of age. Reflective thematic analysis was used to identify important aspects of young people's experiences. Results Four main themes were identified: (1) opportunity to have a meaningful impact, (2) opportunity to be part of a supportive community, (3) opportunity to learn and grow and (4) increasing opportunities for young people. Conclusion This study highlights young people's experiences of being involved in mental health research and identifies ways in which researchers can ensure that involvement opportunities bring benefits to both the young people and the research. Patient or Public Contribution This research was a response to issues raised by young people involved in research. The project was supported by co‐researchers throughout, including design, data collection, analysis and write‐up.

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