healthbook TIMES. Oncology Hematology (Dec 2023)

Swiss Amyloidosis Network (SAN): Objectives and Challenges

  • Rahel Schwotzer,
  • Bernhard Gerber,
  • Andreas Flammer,
  • Axel Rüfer

Journal volume & issue
Vol. 18, no. 4

Abstract

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Systemic amyloidoses are chronic diseases with important consequences for patients' quality of life, thus presenting a major medical and socioeconomic burden. This article discusses the current diagnostic challenges and therapy options for systemic amyloidosis and summarizes the activities of the Swiss Amyloidosis Network (SAN) which aims to increase awareness of these rare diseases, include patients in the Swiss Amyloidosis Registry for research purposes and develop interdisciplinary guidelines for diagnosis and therapy of systemic amyloidosis in Switzerland. PEER REVIEWED ARTICLE Peer reviewers: Prof. Dr Ute Hegenbart (University Hospital Heidelberg, Heidelberg, Germany); One anonymous peer reviewer. Submitted: November 30, 2023 CEST; Accepted: December 03, 2023 CEST