Evaluation of the breaking points in the global care pathway of patients with atopic dermatitis

Abstract

Abstract Background Atopic dermatitis (AD) is a chronic pruritic skin disease with flare‐ups. All age groups can be affected. The quality of life of AD patients can be altered if their medical follow‐up is not optimal. Objectives The aim of this study is to identify the breakpoints in the care pathway for patients with atopic dermatitis. Methods We carried out an analysis of care pathways based on responses from healthcare professionals and patients with AD using anonymized questionnaires designed by a steering committee of expert patients and health care professionals. Results At the end of this survey, we collected 260 responses to the questionnaires from the patients and 57 responses from the healthcare professionals. Three break points were identified. Firstly, a large majority of patients admitted to not having enough social support and especially paramedical support. The second breaking point is patient compliance with treatment. 20% of patients discontinue their treatment, and a vast majority express a lack of information about their disease. The last point of rupture between patients and healthcare professionals is the appointment for their initial consultation; delays are underestimated or under‐reported by practitioners. Conclusions This study shows that some points need to be improved in the patient care process on both sides, patients, and health professional. A dialogue between the two parts should be open to focus on solutions to improve the care pathway of patients with AD.

Keywords

• atopic dermatitis
• care pathway
• patient's journey