INFAD (Jun 2020)
Needs of caregivers of people with dementia in the context of long-term institutionalization: Scoping review
Abstract
Background: Taking the decision to institutionalize the person with dementia is a situation that triggers stress in caregivers, with reports of feelings of loss of control, loneliness, isolation, blame and shame for not being able to maintain the role of caregivers. It is essential to know what are the needs felt by the caregivers of the person with dementia in the context of long-term institutionalization, so that a person-centered intervention can be carried out, encompassing the family members as part of the care. Objective: To identify the needs of caregivers of people with dementia in the context of long-term institutionalization. Methodology: Scoping review developed under the guidelines of the Joanna Briggs Institute, using the databases MEDLINE, CINAHL and ScienceDirect, with the time frame from 2009 to 2018. Results: Six articles were selected that involved caregivers of people with dementia in the context of longterm institutionalization. It was found that there are different needs in the pre and post-institutionalization phases. Pre-institutionalization relates to the decision-making process of institutionalizing the person, which includes the needs to know the institution in advance and the existence of a network that supports the decision. Post-institutionalization refers to the needs that arise from the moment the person is admitted to the institution of long-term care, namely the reception, support during visits, the establishment of a partnership with health professionals, monitoring quality of care and financial issues. Conclusion: The institutionalization of the person with dementia triggers in the caregivers new focuses of needs that should be the target of intervention by health professionals, in order to facilitate the underlying transition process.
Keywords
