JMIR Aging (Nov 2023)

Diabetes Life Expectancy Prediction Model Inputs and Results From Patient Surveys Compared With Electronic Health Record Abstraction: Survey Study

  • Sean Bernstein,
  • Sarah Gilson,
  • Mengqi Zhu,
  • Aviva G Nathan,
  • Michael Cui,
  • Valerie G Press,
  • Sachin Shah,
  • Parmida Zarei,
  • Neda Laiteerapong,
  • Elbert S Huang

DOI
https://doi.org/10.2196/44037
Journal volume & issue
Vol. 6
pp. e44037 – e44037

Abstract

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Abstract BackgroundPrediction models are being increasingly used in clinical practice, with some requiring patient-reported outcomes (PROs). The optimal approach to collecting the needed inputs is unknown. ObjectiveOur objective was to compare mortality prediction model inputs and scores based on electronic health record (EHR) abstraction versus patient survey. MethodsOlder patients aged ≥65 years with type 2 diabetes at an urban primary care practice in Chicago were recruited to participate in a care management trial. All participants completed a survey via an electronic portal that included items on the presence of comorbid conditions and functional status, which are needed to complete a mortality prediction model. We compared the individual data inputs and the overall model performance based on the data gathered from the survey compared to the chart review. ResultsFor individual data inputs, we found the largest differences in questions regarding functional status such as pushing/pulling, where 41.4% (31/75) of participants reported difficulties that were not captured in the chart with smaller differences for comorbid conditions. For the overall mortality score, we saw nonsignificant differences (P ConclusionsIn this small exploratory study, we found that, despite differences in data inputs regarding functional status, the overall performance of a mortality prediction model was similar when using survey and chart-abstracted data. Larger studies comparing patient survey and chart data are needed to assess whether these findings are reproduceable and clinically important.