Measuring the success of programmes of care for people living with dementia: a protocol for consensus building with consumers to develop a set of Core Outcome Measures for Improving Care (COM-IC)
Thomas Morris,
Susan E Kurrle,
Susanna Dodd,
Paula Williamson,
Leon Flicker,
Len Gray,
Osvaldo P Almeida,
Tracy Comans,
John Quinn,
Kim Nguyen,
Judy A Lowthian,
Dominic Trépel,
Alyssa Welch,
Anna Kearney,
Colm Cunningham,
Jack Nunn,
Danelle Kenny,
Glenys Petrie,
Tiet-Hanh Dao-Tran,
Asmita Manchha
Affiliations
Thomas Morris
HammondCare, Sydney, New South Wales, Australia
Susan E Kurrle
School of Public Health, University of Sydney, Sydney, New South Wales, Australia
Susanna Dodd
Department of Health and Data Science, University of Liverpool, Liverpool, UK
Paula Williamson
Department of Health and Data Science, University of Liverpool, Liverpool, UK
Leon Flicker
WA Centre for Health and Ageing, The University of Western Australia, Perth, Western Australia, Australia
Len Gray
Centre for Health Services Research, The University of Queensland, Brisbane, Queensland, Australia
Osvaldo P Almeida
WA Centre for Health and Ageing, The University of Western Australia, Perth, Western Australia, Australia
Tracy Comans
Centre for Health Services Research, The University of Queensland, Brisbane, Queensland, Australia
John Quinn
Centre for Health Services Research, The University of Queensland, Brisbane, Queensland, Australia
Kim Nguyen
3Massachusetts Institute of Technology, Cambridge, MA, USA
Judy A Lowthian
Bolton Clarke Research Institute, Bolton Clarke, Brisbane, Queensland, Australia
Dominic Trépel
Global Brain Health Institute, Trinity College Dublin, Dublin, Ireland
Alyssa Welch
Centre for Health Services Research, The University of Queensland, Brisbane, Queensland, Australia
Anna Kearney
Department of Health and Data Science, University of Liverpool, Liverpool, UK
Colm Cunningham
School of Public Health, University of Sydney, Sydney, New South Wales, Australia
Jack Nunn
Science for All, Melbourne, Victoria, Australia
Danelle Kenny
Centre for Health Services Research, The University of Queensland, Brisbane, Queensland, Australia
Glenys Petrie
Centre for Health Services Research, The University of Queensland, Brisbane, Queensland, Australia
Tiet-Hanh Dao-Tran
Centre for Health Services Research, The University of Queensland, Brisbane, Queensland, Australia
Asmita Manchha
Bolton Clarke Research Institute, Brisbane, Queensland, Australia
Introduction The Core Outcome Measures for Improving Care (COM-IC) project aims to deliver practical recommendations on the selection and implementation of a suite of core outcomes to measure the effectiveness of interventions for dementia care.Methods and analysis COM-IC embeds a participatory action approach to using the Alignment–Harmonisation–Results framework for measuring dementia care in Australia. Using this framework, suitable core outcome measures will be identified, analysed, implemented and audited. The methods for analysing each stage will be codesigned with stakeholders, through the conduit of a Stakeholder Reference Group including people living with dementia, formal and informal carers, aged care industry representatives, researchers, clinicians and policy actors. The codesigned evaluation methods consider two key factors: feasibility and acceptability. These considerations will be tested during a 6-month feasibility study embedded in aged care industry partner organisations.Ethics and dissemination COM-IC has received ethical approval from The University of Queensland (HREC 2021/HE001932). Results will be disseminated through networks established over the project, and in accordance with both the publication schedule and requests from the Stakeholder Reference Group. Full access to publications and reports will be made available through UQ eSpace (https://espace.library.uq.edu.au/), an open access repository hosted by The University of Queensland.
