PERCEPÇÕES DE DOENTES CELÍACOS SOBRE AS CONSEQUÊNCIAS CLÍNICAS E SOCIAIS DE UM POSSÍVEL DIAGNÓSTICO TARDIO NA DOENÇA CELÍACA

Abstract

The aim of the current study is to identify patients’ perceptions about the clinical and emotional impacts of the late diagnosis of celiac disease. The way celiac patients see themselves as ill, their feelings about new eating and social habits, society's vision and behavior towards their comorbidity, and the clinical symptoms in their body affect their clinical and emotional state. Only female celiac patients who attended meetings held by the Celiac Association of Paraná State (Brazil) were interviewed based on a semi-structured script in order to fulfill the aims of the present study. Quantitative-qualitative analysis was carried out based on content. Results showed that 77% of participants categorized their diagnosis as late; among them, 38% stated that the clinical symptoms of the disease appeared during childhood. The knowledge produced in the current study can make professionals and society aware of the clinical and emotional impacts generated by the late diagnosis of celiac disease on the human body, and help these professionals and individual more supportive and comprehensive with celiac patients DOI: 10.12957/demetra.2019.33310

Keywords

• doença celíaca. diagnóstico tardio. vulnerabilidade social.