BJPsych Bulletin (Dec 2023)

EDIFY (Eating Disorders: Delineating Illness and Recovery Trajectories to Inform Personalised Prevention and Early Intervention in Young People): project outline

  • Amelia Hemmings,
  • Helen Sharpe,
  • Karina Allen,
  • Heike Bartel,
  • Iain C. Campbell,
  • Sylvane Desrivières,
  • Richard J.B. Dobson,
  • Amos A. Folarin,
  • Tara French,
  • Jonathan Kelly,
  • Nadia Micali,
  • Sneha Raman,
  • Janet Treasure,
  • Ruby Abbas,
  • Beck Heslop,
  • Tallulah Street,
  • Ulrike Schmidt

DOI
https://doi.org/10.1192/bjb.2022.83
Journal volume & issue
Vol. 47
pp. 328 – 336

Abstract

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EDIFY (Eating Disorders: Delineating Illness and Recovery Trajectories to Inform Personalised Prevention and Early Intervention in Young People) is an ambitious research project aiming to revolutionise how eating disorders are perceived, prevented and treated. Six integrated workstreams will address key questions, including: What are young people's experiences of eating disorders and recovery? What are the unique and shared risk factors in different groups? What helps or hinders recovery? How do the brain and behaviour change from early- to later-stage illness? How can we intervene earlier, quicker and in a more personalised way? This 4-year project, involving over 1000 participants, integrates arts, design and humanities with advanced neurobiological, psychosocial and bioinformatics approaches. Young people with lived experience of eating disorders are at the heart of EDIFY, serving as advisors and co-producers throughout. Ultimately, this work will expand public and professional perceptions of eating disorders, uplift under-represented voices and stimulate much-needed advances in policy and practice.

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