Experiences of Caregivers in Healthcare for and Social Support of HIV Positive Children Attending Schools in Bangkok

Abstract

Purpose: The study was conducted to explore caregivers' experiences and perceptions of barriers to their children receiving appropriate healthcare and support at schools in Thailand. Method: A qualitative narrative study was conducted to achieve the aim stated above. Twenty caregivers of children living with HIV/AIDS attending schools in Bangkok were interviewed in depth. The interviews were audiotaped, transcribed and analyzed using narrative analysis. Results: The analysis indicated that caregivers fear discrimination, suffer from stigma and most do not reveal their child's HIV status to schools. Obstacles to children living with HIV/AIDS getting appropriate care and support in schools are persistent. Caregivers need to collaborate with the public health sector to provide HIV education and support for themselves and for teachers; community nurses would be well placed to provide this. Conclusion: Our findings can inform the design of systems for educational and social support alongside adequate healthcare for children living with HIV/AIDS attending school. The Thai government needs to establish collaboration between the educational and health sectors to reduce the stigma of HIV, promote acceptance and provide support.

Keywords

• AIDS
• caregivers
• child
• HIV
• narrative research