Frontiers in Medicine (Dec 2021)

Empowering Patients in the Therapeutic Decision-Making Process: A Glance Into Behçet's Syndrome

  • Diana Marinello,
  • Federica Di Cianni,
  • Alessandra Del Bianco,
  • Irene Mattioli,
  • Jurgen Sota,
  • Luca Cantarini,
  • Giacomo Emmi,
  • Pietro Leccese,
  • Giuseppe Lopalco,
  • Marta Mosca,
  • Angela Padula,
  • Matteo Piga,
  • Carlo Salvarani,
  • Domenica Taruscio,
  • Rosaria Talarico

DOI
https://doi.org/10.3389/fmed.2021.769870
Journal volume & issue
Vol. 8

Abstract

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Behçet's syndrome (BS) represents a challenging condition, characterized by a variable spectrum of disease profile and associated with a significant limitation of the daily activities as well as a potential negative impact on relationships and psychological status. Considering also the complexity of the therapeutic management of BS, that often includes biological off-label treatments, the participation in the therapeutic decision-making process of the BS patients is essential to ensure the integration of the care process into the life of the patient. For this reason, the empowerment of BS patients represents a crucial need and the present work is aimed at fully exploring all the potential variables implicated in the BS patient empowerment, also highlighting major points to consider and concrete actions to be planned in the immediate future in order to implement a pragmatic facilitation of the patients' empowerment.

Keywords