Establishing the first pan-European Registry for rare bone and mineral disorders: EuRR-Bone

• Corinna Grasemann,
• Marina Mordenti,
• Inês Alves,
• Rebecca Skarberg,
• Ondrej Soucek,
• Marco Roos,
• M. Kassim Javaid,
• S. Faisal Ahmed,
• Agnès Lignart,
• Klaus Mohnike,
• Wolfgang Högler,
• Luca Sangiorgi,
• Natasha M. Appelman-Dijkstra

Affiliations

Corinna Grasemann

Ruhr-University Bochum, Bochum, Germany

Marina Mordenti

IRCCS Istituto Ortopedico Rizzoli, Bologna, Italy

Inês Alves

ERN Bond EPAG Representative ANDO Portugal, Lisabon, Portugal

Rebecca Skarberg

ERN Bond EPAG Representative OIFE, Eindhoven, Netherlands

Ondrej Soucek

Fakulti Nemocnice Motole, Prague, Czech Republic

Marco Roos

Leiden University Medical Center, Leiden, Netherlands

M. Kassim Javaid

University of Oxford, Oxford, United Kingdom

S. Faisal Ahmed

University of Glasgow, Glasgow, United Kingdom; Endocrinology, Leiden University Medical Center, Leiden, Netherlands

Agnès Lignart

Assistance Publique - Hopitaux de Paris, Paris, France

Klaus Mohnike

Otto-von-Guericke-University Magedeburg, Magdeburg, Germany

Wolfgang Högler

Johannes Kepler University Linz and Kepler University Hospital, Linz, Austria

Luca Sangiorgi

IRCCS Istituto Ortopedico Rizzoli, Bologna, Italy; ERN BOND Coordinator, Bologna, Italy

Natasha M. Appelman-Dijkstra

Endocrinology, Leiden University Medical Center, Leiden, Netherlands; Corresponding author.