Clinical Epidemiology (Dec 2021)
Assessing the Validity and Cover Rate of the National Swedish Hernia Register
Abstract
Erik Axman,1,2 Pär Nordin,3 Marina Modin,4 Hanna de la Croix1,2 1Sahlgrenska University Hospital/Östra Hospital, Department of Surgery, Gothenburg, Sweden; 2Department of Surgery, Institute of Clinical Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden; 3Department of Surgery and Perioperative Sciences, Umeå University, Umeå, Sweden; 4Department of Research, Development, Education and Innovation, Skaraborg Hospital, Skövde, SwedenCorrespondence: Erik AxmanSahlgrenska University Hospital/Östra Hospital, Department of Surgery, Gothenburg, 416 85, SwedenTel +46313435474Email [email protected]: To assess the validity and cover rate of the Swedish hernia register.Material and Methods: Since the start of the Swedish Hernia register an annual review of randomly selected hospitals has been carried out, and since 2013 in a more standardized form to allow a systematic data collection and evaluation. 10% of all clinics were randomly selected each year in a specific region of Sweden, ensuring a systematic validation of all regions from north to south. Data from 2013 to 2018 were analyzed regarding data quality and from 2014 to 2018 regarding cover rate. All operations registered at the validated clinics were compared with the Swedish Hernia Register to assess cover rate. Fifty operations were randomly selected at each clinic and data in the Swedish Hernia register were compared with the medical records to evaluate data quality.Results: Fifty-five clinics was evaluated and a total of 73,764 variables were compared with the medical records. Cover rate between 2014 and 2018 was 97%. The proportion of correct variables was 98% between 2013 and 2018. Most frequent errors were ASA score, date at which the patient was put on the waiting list and postoperative complications.Conclusion: This unique validation of a national hernia register shows a high cover rate and good quality of data. Efforts to maintain and improve national registers are of great importance. Research with data from the Swedish hernia register should be evaluated on the basis of the results presented in this study.Keywords: hernia, validity, cover rate, Swedish hernia register, data quality, national registers
