Orphanet Journal of Rare Diseases (Feb 2013)

Clinical pathways for inborn errors of metabolism: warranted and feasible

  • Demirdas Serwet,
  • van Kessel Imke N,
  • Korndewal Marjolein J,
  • Hollak Carla EM,
  • Meutgeert Hanka,
  • Klaren Anja,
  • van Rijn Margreet,
  • van Spronsen Francjan J,
  • Bosch Annet M

DOI
https://doi.org/10.1186/1750-1172-8-37
Journal volume & issue
Vol. 8, no. 1
p. 37

Abstract

Read online

Abstract Inborn errors of metabolism (IEMs) are known for their low prevalence and multidisciplinary care mostly founded on expert opinion. Clinical pathways are multidisciplinary tools to organise care which provide a clear route to the best care and improve communication. In 2010 the Dutch Society for Children and Adults with an Inborn Error of Metabolism (VKS) initiated development of clinical pathways for inborn errors of metabolism. In this letter to the editor we describe why it is warranted to develop clinical pathways for IEMs and shortly discuss the process of development for these pathways in the Netherlands.

Keywords