Patient Preference and Adherence (Oct 2023)
Experience of Disease Acceptance in Chinese Patients with Newly Diagnosed Crohn’s Disease: A Descriptive Qualitative Study
Abstract
Ying Wang,* Jinghan Liu,* Yunxian Zhou School of Nursing, Zhejiang Chinese Medical University, Hangzhou, Zhejiang, People’s Republic of China*These authors contributed equally to this workCorrespondence: Yunxian Zhou, School of Nursing, Zhejiang Chinese Medical University, 548 Binwen Road, Binjiang District, Hangzhou, Zhejiang, 310053, People’s Republic of China, Tel +86 571 86633121, Fax +86 571 86613674, Email [email protected]: High levels of disease acceptance are important predictors of improved psychological well-being, treatment outcomes, and enhanced quality of life. Relatively few studies have focused on the process of disease acceptance in patients with Crohn’s disease (CD), particularly those who are newly diagnosed.Purpose: To explore the disease acceptance process in newly diagnosed CD patients.Patients and Methods: A descriptive qualitative approach was employed. Sixteen CD patients from 2 tertiary hospitals in Hangzhou, Zhejiang were recruited through purposive sampling using a maximum variation strategy. Semi-structured interviews were conducted. The interviews were transcribed verbatim and analysed using conventional content analysis.Results: Five phases of the psychosocial process of the “acceptance journey” of newly diagnosed CD patients emerged from the data analysis: (1) praying for the illness to not be CD; (2) not being able to accept CD; (3) having to accept CD; (4) knowing that CD should be acceptable; and (5) starting to accept CD. Patients at the stage of “starting to accept CD” are more proactive and motivated to face the disease, and their overall acceptance of the disease is higher than that of the previous stages. However, by the end of the interview, 2 patients remained at the stage of “having to accept CD”, and 3 patients remained at the stage of “knowing that CD should be acceptable”. Two patients entered the stage of “starting to accept CD” and then reverted back to one of the previous stages.Conclusion: The “acceptance journey” of newly diagnosed CD patients is dynamic, individual and reversible. Traditional Chinese cultural values such as respect for authority, the philosophy of wu-wei and family responsibility contribute to the acceptance of CD in Chinese patients. Hence, there is a need to provide early and culturally tailored psychological support or interventions according to the stages of acceptance.Keywords: Crohn’s disease, conventional content analysis, disease acceptance, inflammatory bowel disease, qualitative study
