Frontiers in Research Metrics and Analytics (Nov 2023)
Indigenous Peoples and research: self-determination in research governance
- Ibrahim Garba,
- Ibrahim Garba,
- Rogena Sterling,
- Rebecca Plevel,
- Rebecca Plevel,
- William Carson,
- Felina M. Cordova-Marks,
- Jewel Cummins,
- Jewel Cummins,
- Caleigh Curley,
- Dominique David-Chavez,
- Adam Fernandez,
- Adam Fernandez,
- Danielle Hiraldo,
- Vanessa Hiratsuka,
- Maui Hudson,
- Mary Beth Jäger,
- Lydia L. Jennings,
- Lydia L. Jennings,
- Andrew Martinez,
- Joseph Yracheta,
- Joseph Yracheta,
- Nanibaa' A. Garrison,
- Nanibaa' A. Garrison,
- Nanibaa' A. Garrison,
- Stephanie Russo Carroll,
- Stephanie Russo Carroll
Affiliations
- Ibrahim Garba
- Lands of the O'odham and Yaqui peoples, Mel and Enid Zuckerman College of Public Health, University of Arizona, Tucson, AZ, United States
- Ibrahim Garba
- Lands of the O'odham and Yaqui peoples, Native Nations Institute, Udall Center for Studies in Public Policy, University of Arizona, Tucson, AZ, United States
- Rogena Sterling
- Living on the lands of Waikato-Tainui, Te Kotahi Research Institute, University of Waikato, Hamilton, New Zealand
- Rebecca Plevel
- Lands of the O'odham and Yaqui peoples, Native Nations Institute, Udall Center for Studies in Public Policy, University of Arizona, Tucson, AZ, United States
- Rebecca Plevel
- Lands of the Congaree, Catawba, Muscogee, and Eastern Cherokee, Law Library, School of Law, University of South Carolina, Columbia, SC, United States
- William Carson
- Lands of the O'odham and Yaqui peoples, Mel and Enid Zuckerman College of Public Health, University of Arizona, Tucson, AZ, United States
- Felina M. Cordova-Marks
- Lands of the O'odham and Yaqui peoples, Mel and Enid Zuckerman College of Public Health, University of Arizona, Tucson, AZ, United States
- Jewel Cummins
- Lands of the O'odham and Yaqui peoples, Native Nations Institute, Udall Center for Studies in Public Policy, University of Arizona, Tucson, AZ, United States
- Jewel Cummins
- Lands of the O'odham and Yaqui peoples, American Indian Studies-Graduate Interdisciplinary Program, College of Social and Behavioral Sciences, University of Arizona, Tucson, AZ, United States
- Caleigh Curley
- Lands of the O'odham and Yaqui peoples, Mel and Enid Zuckerman College of Public Health, University of Arizona, Tucson, AZ, United States
- Dominique David-Chavez
- Nunt'zi (Ute), Hinono'eino' (Arapaho), and Tsitsistas (Cheyenne) homelands, Department of Forest and Rangeland Stewardship, Colorado State University, Fort Collins, CO, United States
- Adam Fernandez
- Lands of the O'odham and Yaqui peoples, Mel and Enid Zuckerman College of Public Health, University of Arizona, Tucson, AZ, United States
- Adam Fernandez
- Lands of the O'odham and Yaqui peoples, Native Nations Institute, Udall Center for Studies in Public Policy, University of Arizona, Tucson, AZ, United States
- Danielle Hiraldo
- Ancestral homeland of Eastern Siouan-speaking Indigenous peoples (Yesàh, “The People”), American Indian Center, University of North Carolina at Chapel Hill, Chapel Hill, NC, United States
- Vanessa Hiratsuka
- Dena'ina Ełnena, Center for Human Development, College of Health, University of Alaska Anchorage, Anchorage, AK, United States
- Maui Hudson
- Living on the lands of Waikato-Tainui, Te Kotahi Research Institute, University of Waikato, Hamilton, New Zealand
- Mary Beth Jäger
- Lands of the O'odham and Yaqui peoples, Native Nations Institute, Udall Center for Studies in Public Policy, University of Arizona, Tucson, AZ, United States
- Lydia L. Jennings
- Lands of the O'odham and Yaqui peoples, Mel and Enid Zuckerman College of Public Health, University of Arizona, Tucson, AZ, United States
- Lydia L. Jennings
- Lands of the O'odham and Yaqui peoples, Native Nations Institute, Udall Center for Studies in Public Policy, University of Arizona, Tucson, AZ, United States
- Andrew Martinez
- Lands of the O'odham and Yaqui peoples, Native Nations Institute, Udall Center for Studies in Public Policy, University of Arizona, Tucson, AZ, United States
- Joseph Yracheta
- Lands of the Oceti Sakowin (Seven council fires of the Lakota/Nakoda/Dakota), Native BioData Consortium, Eagle Butte, SD, United States
- Joseph Yracheta
- 0Ancestral homelands of the Paskestikweya (Piscataway) band of Chaptico, the Moyaone, Nanjemoy, and the Potapoco, Bloomberg School of Public Health, Johns Hopkins University, Baltimore, MD, United States
- Nanibaa' A. Garrison
- 1Traditional, ancestral and unceded territory of the Gabrielino/Tongva peoples, Institute for Society and Genetics, College of Letters and Sciences, University of California, Los Angeles, Los Angeles, CA, United States
- Nanibaa' A. Garrison
- 2Traditional, ancestral and unceded territory of the Gabrielino/Tongva peoples, Institute for Precision Health, David Geffen School of Medicine, University of California, Los Angeles, Los Angeles, CA, United States
- Nanibaa' A. Garrison
- 3Traditional, ancestral and unceded territory of the Gabrielino/Tongva peoples, Division of General Internal Medicine and Health Services Research, David Geffen School of Medicine, University of California, Los Angeles, Los Angeles, CA, United States
- Stephanie Russo Carroll
- Lands of the O'odham and Yaqui peoples, Mel and Enid Zuckerman College of Public Health, University of Arizona, Tucson, AZ, United States
- Stephanie Russo Carroll
- Lands of the O'odham and Yaqui peoples, Native Nations Institute, Udall Center for Studies in Public Policy, University of Arizona, Tucson, AZ, United States
- DOI
- https://doi.org/10.3389/frma.2023.1272318
- Journal volume & issue
-
Vol. 8
Abstract
Indigenous Peoples are reimagining their relationship with research and researchers through greater self-determination and involvement in research governance. The emerging discourse around Indigenous Data Sovereignty has provoked discussions about decolonizing data practices and highlighted the importance of Indigenous Data Governance to support Indigenous decision-making and control of data. Given that much data are generated from research, Indigenous research governance and Indigenous Data Governance overlap. In this paper, we broaden the concept of Indigenous Data Sovereignty by using the CARE Principles for Indigenous Data Governance to discuss how research legislation and policy adopted by Indigenous Peoples in the US set expectations around recognizing sovereign relationships, acknowledging rights and interests in data, and enabling Indigenous Peoples' participation in research governance.
Keywords
