A feasibility evaluation of Discovery Group: determining the acceptability and potential outcomes of a patient-led research group in a secure mental health inpatient setting

Abstract

Plain English Summary Patients make an important contribution to research. However, it can be hard for patients in a secure mental health hospital to be involved in doing research. So we designed a programme called Discovery Group to give patients a chance to learn about research by doing it themselves with support. Then we did this study to answer three questions: 1. Did patients find Discovery Group acceptable? 2. What are the benefits of Discovery Group? 3. How can it be improved? Each patient completed two questionnaires about their experiences of Discovery Group. The first questionnaire asked about their level of satisfaction and how acceptable they found it. The second questionnaire asked about the benefits of Discovery Group. Patients also gave ideas for improving Discovery Group. Overall, the patients found Discovery Group acceptable and worthwhile. They would all recommend it to other patients. However, they felt that had to put in quite a bit of effort. Patients learned about research and felt valued as fellow researchers. Discovery Group also helped them feel more confident and connected but did not help them feel more hopeful or empowered. Patients suggested using the computer during Discovery Group for a better experience. The study showed that Discovery Group allows patients in a secure mental health hospital to be involved in research in an easy and acceptable way. There may be benefits for patients who join Discovery Group. We hope to improve Discovery Group and see if it can offer more benefits for more patients.

Keywords

• Patient involvement
• Forensic psychiatry
• PPIE
• Recovery
• Mental health
• Secure service