The strategies of parents who tell their daughters about the possibility of being a haemophilia carrier

Abstract

Women who carry the haemophilia gene have a genetic risk of having a son with haemophilia, as well as the risk of abnormal bleeding; thus, there is an increasing interest in ‘carriers’ as subjects that potentially require medical support. However, in Japan, only about half of individuals with a family history of haemophilia inform their daughters that they may be carriers.

Keywords

• haemophilia
• carriers
• parents
• communication