Research Involvement and Engagement (May 2022)

‘Getting involved in research’: a co-created, co-delivered and co-analysed course for those with lived experience of health and social care services

  • Carolyn Blair,
  • Paul Best,
  • Patricia Burns,
  • Anne Campbell,
  • Gavin Davidson,
  • Joe Duffy,
  • Anne Johnston,
  • Berni Kelly,
  • Campbell Killick,
  • Denise Mac Dermott,
  • Alan Maddock,
  • Claire Jane McCartan,
  • Paula McFadden,
  • Anne McGlade,
  • Lorna Montgomery,
  • Sonia Patton,
  • Dirk Schubotz,
  • Brian Taylor,
  • Fiona Templeton,
  • Paul Webb,
  • Chris White,
  • Jade Yap

DOI
https://doi.org/10.1186/s40900-022-00353-x
Journal volume & issue
Vol. 8, no. 1
pp. 1 – 16

Abstract

Read online

Plain English summary The aim of this study was to gather information to help us understand the experience of participants’ undertaking a research course called ‘Getting Involved in Research’. A group of individuals including those with lived experience of health and social care services, academics, community and voluntary sector workers and a representative from the Department of Health in Northern Ireland worked together to develop a course to encourage and support people to engage with research. The ‘Getting Involved in Research’, course was designed to provide an understandable introduction to research for those people with lived experience of health and social care. We did this because research in health and social care sector should involve the patients and public who it is intended to help. The evaluation of the course had two distinct phases; we asked course participants to complete a survey before and after the course (pre- and post-course survey) and also asked them to complete a journal reflecting on their experiences after each lecture. This paper gives an overview of the profile of course participants and their responses to the survey questions. The survey answers were analysed using an approach to analysing information which encourages involvement from people with a range of experience of research methods, (known as Participatory Theme Elicitation). Thirty-five participants in total participated in ‘Getting Involved in Research’. Age ranges varied from 19 to 73 years old. Participants were predominately female (n = 24), five males participated (n = 5) and there was one participant who identified as non-binary (n = 1). Participants in ‘Getting Involved in Research’ reported that the content of the course was relevant, encouraged awareness of research methods and encourage their future involvement in research.

Keywords