Journal of Patient Experience (Jul 2021)

Family Perceptions of Palliative Care and Communication in the Surgical Intensive Care Unit

  • Kristina Paré BSPH,
  • Joanna Grudziak MD, MPH,
  • Kyle Lavin MD, MPH,
  • May-Britt Sten MSN, RN, CPHQ,
  • Anneka Huegerich BSN, RN,
  • Karl Umble PhD, MPH,
  • Emma Twer BS,
  • Trista Reid MD, MPH

DOI
https://doi.org/10.1177/23743735211033095
Journal volume & issue
Vol. 8

Abstract

Read online

Few data exist on palliative care for trauma and acute care surgery patients. This pilot study evaluated family perceptions and experiences around palliative care in a surgical intensive care unit (SICU) via mixed methods interviews conducted from February 1, 2020, to March 5, 2020, with 5 families of patients in the SICU. Families emphasized the importance of clear, honest communication, and inclusiveness in decision-making. Many interviewees were unable to recall whether goals-of-care discussions had occurred, and most lacked understanding of the patients’ illnesses. This study highlights the significance of frequent communication and goals-of-care discussions in the SICU.