Lupus Science and Medicine (Aug 2024)

Meeting report: patient and caregiver recommendations for a mobile health application for paediatric systemic lupus erythematosus

  • Laura Eve Schanberg,
  • Rachel L Randell,
  • Lisa B Hightow-Weidman,
  • Katrina Guardino,
  • Malaya Gaerlan,
  • Caitlan S Pinotti,
  • Kimberly R Burnett,
  • Deborah Kofoed

DOI
https://doi.org/10.1136/lupus-2024-001305
Journal volume & issue
Vol. 11, no. 2

Abstract

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Paediatric systemic lupus erythematosus (pSLE) management and research could be enhanced by a mobile health application (app); however, no app designed for pSLE is currently available. A development and design committee comprising of patients, parents/caregivers and other stakeholders met to inform development and design of an app specific for pSLE. This meeting report summarises the group’s discussions and recommendations that could help create a useful and desirable app or mobile health tool for the pSLE community.