Lupus Science and Medicine (Aug 2024)
Meeting report: patient and caregiver recommendations for a mobile health application for paediatric systemic lupus erythematosus
Abstract
Paediatric systemic lupus erythematosus (pSLE) management and research could be enhanced by a mobile health application (app); however, no app designed for pSLE is currently available. A development and design committee comprising of patients, parents/caregivers and other stakeholders met to inform development and design of an app specific for pSLE. This meeting report summarises the group’s discussions and recommendations that could help create a useful and desirable app or mobile health tool for the pSLE community.