Heliyon (Oct 2023)
Functional outcome in late adolescence/early adulthood of patients with autism spectrum disorder and its relationships with parental burnout and depression: A preliminary multi-center, cross-sectional study
- Meryem Ozlem Kutuk,
- Ali Evren Tufan,
- Fethiye Kilicaslan,
- Pınar Vural,
- Cem Gokcen,
- Sevay Alsen Guney,
- Bahtim Kutuk,
- Gonca Ozyurt,
- Neslihan Inal,
- Tuba Mutluer,
- Eren Yavuz Acikalin,
- Fadime Hande Ozer,
- Esma Nur Pamuk,
- Seyma Celikcan Yesilmese,
- Mehmet Karadag,
- Zehra Hangul,
- Cilem Bilginer,
- Nilfer Sahin,
- Oznur Bilac,
- Hasan Kandemir,
- Eyup Sabri Ercan,
- Tugba Eseroglu Soylemez,
- Sadettin Burak Acikel,
- Gulen Guler Aksu,
- Pelin Dag,
- Fevziye Toros,
- Caner Mutlu,
- Omer Kardas,
- Burcu Kardas,
- Suleyman Kizildag,
- Esra Demirci,
- Sevgi Ozmen,
- Leyla Sevicin,
- Yuksel Sumeyra Karagoz,
- Umit Isik,
- Evrim Aktepe,
- Hatice Altun,
- Çigdem Yektas,
- Berna Polat Tuysuz,
- Ahmet Buber,
- Mehmet Akif Cansiz,
- Hakan Ogutlu,
- Safak Eray,
- Hande Ayraler Taner,
- Ebru Altintas,
- Ozgur Kutuk
Affiliations
- Meryem Ozlem Kutuk
- Department of Child and Adolescent Psychiatry, Baskent University Faculty of Medicine, Adana Dr. Turgut Noyan Medical and Research Center, Adana, Turkey; Corresponding author.
- Ali Evren Tufan
- Department of Child and Adolescent Psychiatry, Bolu Abant Izzet Baysal University, Faculty of Medicine, Bolu, Turkey
- Fethiye Kilicaslan
- Department of Child and Adolescent Psychiatry, Harran University, Faculty of Medicine, Sanliurfa, Turkey
- Pınar Vural
- Department of Child and Adolescent Psychiatry, Uludag University, Faculty of Medicine, Bursa, Turkey
- Cem Gokcen
- Department of Child and Adolescent Psychiatry, Gaziantep University, Faculty of Medicine, Gaziantep, Turkey
- Sevay Alsen Guney
- Department of Child and Adolescent Psychiatry, Dokuz Eylul University Faculty of Medicine, Izmir, Turkey
- Bahtim Kutuk
- Department of Psychology, Ege University, Izmir, Turkey
- Gonca Ozyurt
- Department of Child and Adolescent Psychiatry, İzmir Katip Celebi University, Faculty of Medicine, Izmir, Turkey
- Neslihan Inal
- Department of Child and Adolescent Psychiatry, Dokuz Eylul University Faculty of Medicine, Izmir, Turkey
- Tuba Mutluer
- Department of Child and Adolescent Psychiatry, Koc University Faculty of Medicine, Istanbul, Zip code: 34450, Turkey
- Eren Yavuz Acikalin
- Department of Child and Adolescent Psychiatry, Koc University Faculty of Medicine, Istanbul, Zip code: 34450, Turkey
- Fadime Hande Ozer
- Department of Psychology, Hasan Kalyoncu University, Gaziantep, Zipcode: 27410, Turkey
- Esma Nur Pamuk
- Department of Psychology, Cag University, Mersin, Zip code: 33800, Turkey
- Seyma Celikcan Yesilmese
- Department of Psychology, Cag University, Mersin, Zip code: 33800, Turkey
- Mehmet Karadag
- Department of Child and Adolescent Psychiatry, Gaziantep University, Faculty of Medicine, Gaziantep, Zip code: 27310, Turkey
- Zehra Hangul
- Department of Child and Adolescent Psychiatry, Gaziantep University, Faculty of Medicine, Gaziantep, Zip code: 27310, Turkey
- Cilem Bilginer
- Department of Child and Adolescent Psychiatry, Karadeniz Technical University, Faculty of Medicine, Trabzon, Zip code: 61080, Turkey
- Nilfer Sahin
- Department of Child and Adolescent Psychiatry, Mugla Sitki Kocman University, Faculty of Medicine, Mugla, Zip code: 48000, Turkey
- Oznur Bilac
- Department of Child and Adolescent Psychiatry, Manisa Celal Bayar University, Faculty of Medicine, Manisa, Zip code: 45030, Turkey
- Hasan Kandemir
- Department of Child and Adolescent Psychiatry, Manisa Celal Bayar University, Faculty of Medicine, Manisa, Zip code: 45030, Turkey
- Eyup Sabri Ercan
- Department of Child and Adolescent Psychiatry, Ege University, Faculty of Medicine, İzmir, Zip code: 35040, Turkey
- Tugba Eseroglu Soylemez
- Department of Child and Adolescent Psychiatry, Baskent University, Faculty of Medicine, Istanbul Medical and Research Center, Istanbul, Zip code: 34662, Turkey
- Sadettin Burak Acikel
- Department of Child and Adolescent Psychiatry, Konya City Training and Research Hospital, Konya, Zip code: 42090, Turkey
- Gulen Guler Aksu
- Department of Child and Adolescent Psychiatry, Mersin University, Faculty of Medicine, Mersin, Zip code: 33343, Turkey
- Pelin Dag
- Department of Child and Adolescent Psychiatry, Mersin City Training and Research Hospital, Mersin, Zip code: 33240, Turkey
- Fevziye Toros
- Department of Child and Adolescent Psychiatry, Mersin University, Faculty of Medicine, Mersin, Zip code: 33343, Turkey
- Caner Mutlu
- Department of Child and Adolescent Psychiatry, Uludag University Faculty of Medicine, Bursa, Zip code: 34494, Turkey
- Omer Kardas
- Department of Child and Adolescent Psychiatry, Dicle University, Faculty of Medicine, Diyarbakır, Zip code: 21280, Turkey
- Burcu Kardas
- Department of Child and Adolescent Psychiatry, Gazi Yasargil Education and Research Hospital, Diyarbakir, Zip code: 21010, Turkey
- Suleyman Kizildag
- Department of Child and Adolescent Psychiatry, Dicle University, Faculty of Medicine, Diyarbakır, Zip code: 21280, Turkey
- Esra Demirci
- Department of Child and Adolescent Psychiatry, Erciyes University, Faculty of Medicine, Kayseri, Zip code: 38039, Turkey
- Sevgi Ozmen
- Department of Child and Adolescent Psychiatry, Erciyes University, Faculty of Medicine, Kayseri, Zip code: 38039, Turkey
- Leyla Sevicin
- Department of Child and Adolescent Psychiatry, Erciyes University, Faculty of Medicine, Kayseri, Zip code: 38039, Turkey
- Yuksel Sumeyra Karagoz
- Department of Child and Adolescent Psychiatry, Training and Research Hospital, Erzurum, Zip code: 25240, Turkey
- Umit Isik
- Department of Child and Adolescent Psychiatry, Suleyman Demirel University, Faculty of Medicine, Isparta, Zip code: 71100, Turkey
- Evrim Aktepe
- Department of Child and Adolescent Psychiatry, Suleyman Demirel University, Faculty of Medicine, Isparta, Zip code: 71100, Turkey
- Hatice Altun
- Department of Child and Adolescent Psychiatry, Kahramanmaras Sutcu Imam University, Faculty of Medicine, Kahramanmaras, Zip code: 46000, Turkey
- Çigdem Yektas
- Department of Child and Adolescent Psychiatry, Uskudar University, Istanbul, Zip code: 34662, Turkey
- Berna Polat Tuysuz
- Department of Child and Adolescent Psychiatry, Sanliurfa Education and Research Hospital, Sanliurfa, Zip code: 63250, Turkey
- Ahmet Buber
- Department of Child and Adolescent Psychiatry, Pamukkale University, Faculty of Medicine, Denizli, Zip code: 20070, Turkey
- Mehmet Akif Cansiz
- Department of Child and Adolescent Psychiatry, Yozgat Bozok University, Faculty of Medicine, Yozgat, Zip code: 66100, Turkey
- Hakan Ogutlu
- Department of Child and Adolescent Psychiatry, Ankara City Hospital, Ankara, Zip code: 06800, Turkey
- Safak Eray
- Department of Child and Adolescent Psychiatry, Uludag University Faculty of Medicine, Bursa, Zip code: 16059, Turkey
- Hande Ayraler Taner
- Department of Child and Adolescent Psychiatry, Baskent University, Medical Faculty, Ankara, Zip code: 06490, Turkey
- Ebru Altintas
- Department of Psychiatry, Baskent University Faculty of Medicine, Adana Dr. Turgut Noyan Medical and Research Center, Adana, Zip code: 01110, Turkey
- Ozgur Kutuk
- Department of Immunology, Baskent University Faculty of Medicine, Adana Dr. Turgut Noyan Medical and Research Center, Adana, Zip code: 01110, Turkey
- Journal volume & issue
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Vol. 9,
no. 10
p. e20766
Abstract
The aim of this study is to determine the functioning of adults with autism spectrum disorders (ASDs) diagnosed in childhood and depression and burnout levels among their parents. A total of 261 adults with ASDs and their parents were recruited for the study. Both parents completed the Beck Depression and Maslach Burnout Inventories and reported the functioning of their adult offspring with ASDs. Only 5.4 % of our sample reported “good” or “very good” outcomes. The most common psychiatric comorbidities were intellectual disabilities and attention-deficit/hyperactivity disorder. Maternal burnout and depression scores were significantly elevated compared to those of fathers. There is an undeniable urgent need for more research to identify the needs of adults and families suffering from ASD. Modifications for those with ASD may have to be made for support in workplaces, achieving driving licenses, using public transportation and attendance at tertiary education.
