Journal of Patient-Reported Outcomes (Apr 2022)

A systematic review and recommendations for prom instruments for older people with frailty in emergency care

  • James David van Oppen,
  • Abdullah Alshibani,
  • Timothy John Coats,
  • Blair Graham,
  • Patricia Holch,
  • Jagruti Lalseta,
  • Nicola Mackintosh,
  • Vivien Richardson,
  • Peter Riley,
  • Jose M. Valderas,
  • Simon Paul Conroy

DOI
https://doi.org/10.1186/s41687-022-00438-x
Journal volume & issue
Vol. 6, no. 1
pp. 1 – 11

Abstract

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Abstract Introduction The current service metrics used to evaluate quality in emergency care do not account for specific healthcare outcome goals for older people living with frailty. These have previously been classified under themes of ‘Autonomy’ and ‘Functioning’. There is no person-reported outcome measure (PROM) for older people with frailty and emergency care needs. This study aimed to identify and co-produce recommendations for instruments potentially suitable for use in this population. Methods In this systematic review, we searched six databases for PROMs used between 2010 and 2021 by older people living with frailty receiving acute hospital care. Studies were reviewed against predefined eligibility criteria and appraised for quality using the COSMIN Risk of Bias checklist. Data were extracted to map instrument constructs against an existing framework of acute healthcare outcome goals. Instrument face and content validity were assessed by lay collaborators. Recommendations for instruments with potential emergency care suitability were formed through co-production. Results Of 9392 unique citations screened, we appraised the full texts of 158 studies. Nine studies were identified, evaluating nine PROMs. Quality of included studies ranged from ‘doubtful’ to ‘very good’. Most instruments had strong evidence for measurement properties. PROMs mainly assessed ‘Functioning’ constructs, with limited coverage of ‘Autonomy’. Five instruments were considered too burdensome for the emergency care setting or too specific for older people living with frailty. Conclusions Four PROMs were recommended as potentially suitable for further validation with older people with frailty and emergency care needs: COOP/WONCA charts, EuroQol, McGill Quality of Life (Expanded), and Palliative care Outcome Scale.

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