FACETS (Jan 2022)
An inclusive and diverse governance structure of the strategy for patient-oriented research (SPOR) Evidence Alliance
- Carole Lunny,
- Wasifa Zarin,
- Sabrina Chaudhry,
- Sonia M. Thomas,
- Annie LeBlanc,
- Sophie Desroches,
- Tanya Horsley,
- Heather Colquhoun,
- Priscille-Nice Sanon,
- Minnie Downey,
- Zahra Goodarzi,
- Nancy N. Baxter,
- Kelly English,
- Elliot PausJenssen,
- Shanon McQuitty,
- Linda Wilhelm,
- Annette McKinnon,
- Alison M. Hoens,
- Linda C. Li,
- Fiona Clement,
- Janet A. Curran,
- Ahmed M. Abou-Setta,
- Christina Godfrey,
- David Moher,
- Pertice Moffitt,
- Jennifer Walker,
- Janet Jull,
- Cheryl Koehn,
- Wanrudee Isaranuwatchai,
- Sharon E. Straus,
- Andrea C. Tricco
Affiliations
- Carole Lunny
- Cochrane Hypertension Review Group, Therapeutics Initiative, Department of Anesthesiology, Pharmacology & Therapeutics, Faculty of Medicine, University of British Columbia, 2176 Health Science Mall, Vancouver, BC V6T 1Z3, Canada
- Wasifa Zarin
- Knowledge Translation Program, Li Ka Shing Knowledge Institute, St. Michael’s Hospital, Unity Health Toronto, 209 Victoria Street, East Building, Toronto, ON M5B 1T8, Canada
- Sabrina Chaudhry
- Knowledge Translation Program, Li Ka Shing Knowledge Institute, St. Michael’s Hospital, Unity Health Toronto, 209 Victoria Street, East Building, Toronto, ON M5B 1T8, Canada
- Sonia M. Thomas
- Knowledge Translation Program, Li Ka Shing Knowledge Institute, St. Michael’s Hospital, Unity Health Toronto, 209 Victoria Street, East Building, Toronto, ON M5B 1T8, Canada
- Annie LeBlanc
- VITAM Research Center on Sustainable Health, CIUSSS de la Capitale Nationale, Quebec City, QC G1J 0A4, Canada
- Sophie Desroches
- School of Nutrition, Université Laval, Centre Nutrition, santé et société (NUTRISS), Institute of Nutrition and Functional Foods (INAF), Université Laval, 2440 Blvd Hochelaga, Quebec City, QC G1V 0A6, Canada
- Tanya Horsley
- Research Unit, Royal College of Physicians and Surgeons of Canada, 774 Echo Drive, Ottawa, ON K1S 5N8, Canada
- Heather Colquhoun
- Department of Occupational Science & Occupational Therapy, University of Toronto, 500 University Ave, Toronto, ON M5G 1V7, Canada
- Priscille-Nice Sanon
- Sickle Cell Anemia Association of Quebec, 333, Saint-Denis Street, office 3, Montréal, QC H2R 2E5, Canada
- Minnie Downey
- BC SUPPORT Unit, Suite 420, 1367 West Broadway, Vancouver, BC V6H 4A7, Canada
- Zahra Goodarzi
- Department of Medicine and Community Health Sciences, Hotchkiss Brain Institute and O’Brien Institute of Public Health, University of Calgary, 2500 University Drive NW, Calgary, AB T2N 1N4, Canada
- Nancy N. Baxter
- Melbourne School of Population and Global Health, University of Melbourne, 207 Bouverie Street, Melbourne, VIC 3053, Australia
- Kelly English
- Arthritis Patients Advisory Board, 5591 No. 3 Rd., Richmond, BC V6X 2C7, Canada
- Elliot PausJenssen
- Saskatoon Council on Aging, 2020 College Dr, Saskatoon, SK S7N 2W4, Canada
- Shanon McQuitty
- Arthritis Patient Advisory Board of Arthritis Research Canada, 2238 Yukon Street, Vancouver, BC V5Y 3P2, Canada
- Linda Wilhelm
- The Canadian Arthritis Patient Alliance, Canada
- Annette McKinnon
- Patient Advisors Network, Canada
- Alison M. Hoens
- BC SUPPORT Unit, Suite 420, 1367 West Broadway, Vancouver, BC V6H 4A7, Canada
- Linda C. Li
- Department of Physical Therapy, University of British Columbia, 2177 Wesbrook Mall, Vancouver, BC V6T 1Z3, Canada;
- Fiona Clement
- Department of Community Health Sciences, Cumming School of Medicine, University of Calgary, 3280 Hospital Dr NW, Calgary, AB T2N 4N6, Canada
- Janet A. Curran
- School of Nursing, Faculty of Health, Dalhousie University, 5869 University Ave, Halifax, NS B3H 4R2, Canada
- Ahmed M. Abou-Setta
- George & Fay Yee Centre for Healthcare Innovation, Rady Faculty of Health Sciences, University of Manitoba, 367-753 McDermot Ave, Winnipeg, MB R3E 0T6, Canada
- Christina Godfrey
- Queen’s Collaboration for Health Care Quality: A JBI Centre of Excellence, Queen’s University School of Nursing, 92 Barrie Street, Kingston, ON K7L 3J8, Canada
- David Moher
- School of Epidemiology and Public Health, Faculty of Medicine, University of Ottawa, 451 Smyth Rd, Ottawa, ON K1H 8M5, Canada
- Pertice Moffitt
- North Slave Research Centre, Aurora College, Bag 9700, 5004-54th St, Yellowknife, NT X1A 2R3, Canada
- Jennifer Walker
- Associate Professor, Health Research Methods, Evidence and Impact, Faculty of Health Sciences, McMaster University
- Janet Jull
- School of Rehabilitation Therapy, Faculty of Health Sciences, Queen’s University, 31 George Street, Kingston, ON K7L 3N6, Canada
- Cheryl Koehn
- Arthritis Consumer Experts, 1529 West 6th Ave, Vancouver, BC V6J 1R1, Canada
- Wanrudee Isaranuwatchai
- Knowledge Translation Program, Li Ka Shing Knowledge Institute, St. Michael’s Hospital, Unity Health Toronto, 209 Victoria Street, East Building, Toronto, ON M5B 1T8, Canada
- Sharon E. Straus
- Knowledge Translation Program, Li Ka Shing Knowledge Institute, St. Michael’s Hospital, Unity Health Toronto, 209 Victoria Street, East Building, Toronto, ON M5B 1T8, Canada
- Andrea C. Tricco
- Knowledge Translation Program, Li Ka Shing Knowledge Institute, St. Michael’s Hospital, Unity Health Toronto, 209 Victoria Street, East Building, Toronto, ON M5B 1T8, Canada
- DOI
- https://doi.org/10.1139/facets-2021-0129
- Journal volume & issue
-
Vol. 7
pp. 435 – 447
Abstract
The Strategy for Patient Oriented Research (SPOR) Evidence Alliance is a research initiative in Canada whose mission is to promote the synthesis, dissemination, and integration of research results into health care and public health decision-making and clinical practice. The aim of this paper is to (i) outline the governance and committee structure of the SPOR Evidence Alliance, (ii) outline the procedures for patient and health system decision-maker engagement, and (iii) present the capacity-building strategy for governance members. The governance structure includes the following six standing committees: the International Advisory Committee, Steering Committee, Executive Committee, Knowledge Translation Committee, Partnerships Committee, and Training and Capacity Development Committee. The guiding principles embrace inclusiveness, support, mutual respect, transparency, and co-building. There are currently 64 committee members across the six committees, 13 patient and public partners, 8 health system decision-makers, 7 research trainees, and 36 researchers. A multi-disciplinary and diverse group of people in Canada are represented from all regions and at various levels of training in knowledge generation, exchange, and translation. This collaborative model makes the SPOR Evidence Alliance strong and sustainable by leveraging the knowledge, lived experiences, expertise, skills, and networks among its 342 members and 12 principal investigators.
Keywords
- patient-oriented research
- integrated knowledge translation
- knowledge user
- health system
- knowledge synthesis
- governance