Canadian Respiratory Journal (Jan 2025)

Validating the Data Completeness and Accuracy of the Canadian Cystic Fibrosis Registry

Ranjani Somayaji,
Stephanie Y. Cheng,
Noma Abdulrahem,
Sanja Stanojevic,
Paul Eckford,
Bradley S. Quon,
Elizabeth Cromwell,
Albert Faro,
Christopher H. Goss,
Anne L. Stephenson

Affiliations

Ranjani Somayaji: Department of Medicine
Stephanie Y. Cheng: Cystic Fibrosis Canada
Noma Abdulrahem: Cystic Fibrosis Canada
Sanja Stanojevic: Department of Community Health and Epidemiology
Paul Eckford: Cystic Fibrosis Canada
Bradley S. Quon: Department of Medicine
Elizabeth Cromwell: Cystic Fibrosis Foundation
Albert Faro: Cystic Fibrosis Foundation
Christopher H. Goss: Division of Pulmonary
Anne L. Stephenson: Division of Respirology

DOI: https://doi.org/10.1155/carj/8893074
Journal volume & issue: Vol. 2025

Abstract

Conclusion: Our validation of the CCFR demonstrated high accuracy for clinical and demographic variables used in clinical research.

Published in Canadian Respiratory Journal

ISSN: 1198-2241 (Print); 1916-7245 (Online)
Publisher: Wiley
Country of publisher: United Kingdom
LCC subjects: Medicine: Internal medicine: Specialties of internal medicine: Diseases of the respiratory system
Website: https://onlinelibrary.wiley.com/journal/7503

About the journal