O-10: SICKLE CELL HEALTH AWARENESS, PERSPECTIVES AND EXPERIENCES (SHAPE) SURVEY: FINDINGS ON THE BURDEN OF SICKLE CELL DISEASE AND UNMET NEEDS AS REPORTED BY PATIENTS AND CAREGIVERS

• ODAME I.,
• ANDERSON A.,
• COSTA F.,
• INUSA B.,
• JASTANIAH W.,
• KUNZ J.,
• AL KADHEM Z.,
• TINGA B.,
• BA D.,
• INGOLI E.,
• JAMES J.,
• CLARK A.,
• BEAUBRUN A.,
• LARTEY B.,
• DE MONTALEMBERT M.

Affiliations

ODAME I.

1 Division of Hematology/Oncology, The Hospital for Sick Children, Toronto, CANADA

ANDERSON A.

2 Department of Pediatric Hematology-Oncology, PRISMA Health-Upstate Comprehensive SCD Program, Greenville, SC, UNITED STATES

COSTA F.

3 Haematology and Haemotherapy Centre, School of Medicine, University of Campinas - UNICAMP, Campinas, São Paulo, BRAZIL

INUSA B.

4 Department of Paediatric Haematology, Guy’s and St Thomas’ Hospital, London, UNITED KINGDOM

JASTANIAH W.

5 King Faisal Specialist Hospital & Research Center, Jeddah, SAUDI ARABIA

KUNZ J.

6 Department of Pediatric Oncology, Hematology and Immunology, Hopp Children’s Cancer Center (KiTZ) Heidelberg, University of Heidelberg, Heidelberg, GERMANY

AL KADHEM Z.

7 Bahrain Sickle Cell Society, Bahrain, BAHRAIN

TINGA B.

8 Sickle Cell Disease Association of Canada, Toronto, CANADA

BA D.

9 SOS GLOBI, Créteil, FRANCE

INGOLI E.

10 IST e.V., German Sickle Cell Disease and Thalassaemia Association, Eschweiler, GERMANY

JAMES J.

11 Sickle Cell Society, London, UNITED KINGDOM

CLARK A.

12 Sickle Cell Disease Association of America, Inc., Baltimore, MD, UNITED STATES

BEAUBRUN A.

13 Global Blood Therapeutics, South San Francisco, CA, UNITED STATES

LARTEY B.

14 Ipsos Healthcare, London, UNITED KINGDOM

DE MONTALEMBERT M.

15 Department of Pediatrics, Necker-Enfants Malades Hospital, Paris, FRANCE