Lack of freedom predicted poor self‐reported health among family caregivers of children with disabilities during the COVID‐19 pandemic in Europe

Abstract

Abstract Aim We aim to assess the effects of the COVID‐19 pandemic on self‐reported health and quality of life among family caregivers of children with disabilities across Europe. Design Cross‐sectional study. Methods Data from the survey by the Eurocarers and IRCCS‐INRCA were used. The data were collected between November 2020 and March 2021 from 16 European countries. Data analysis was done using regression analysis to identify family caregivers' self‐reported health and well‐being predictors. Results This study included 289 caregivers. The mean age of children was 12 years. Their family caregiver's mean age was 44, and they were mainly women. Experience of lack of freedom predicted family caregivers' poor self‐reported health and quality of life. Children's interrupted health and social services also predicted family caregivers' poor self‐reported mental well‐being. Longitudinal evidence on the pandemic's effects and a diverse view of family caregivers of children with disabilities are needed to plan effective post‐pandemic health services and nursing practice. No Patient or Public Contribution.

Keywords

• covid‐19
• family caregivers of children with disabilities
• mental health
• nursing
• self‐reported health