Patient Preference and Adherence (Oct 2023)
The Perspective of Patients and Health Professionals on the Prioritization of Assisted Reproductive Techniques. The PRIOFER Study
Abstract
César Lizán Tudela,1 Irene Cuevas Sáiz,2 Lorenzo Abad de Velasco,2 Laura Gregori Navarro,1 Marta Comellas,3 Francisco Javier Pérez-Sádaba,3 Luis Lizán3,4 1Department of Paediatrics, Obstetrics and Gynaecology, Hospital Clínico Universitario, Valencia, 46010, Spain; 2Department of Paediatrics, Obstetrics and Gynaecology, Consorcio Hospital General Universitario de Valencia, Valencia, 46014, Spain; 3Outcomes 10 SLU, Castellón de la Plana, Spain; 4Department of Medicine, Jaume I University, Castellón de la Plana, SpainCorrespondence: César Lizán Tudela, Department of Paediatrics, Obstetrics and Gynaecology, Hospital Clínico Universitario, Avda. Blasco Ibañez, 17, Valencia, 46010, Spain, Tel +34 654662524, Email [email protected]: To determine the perspective of patients and professionals in Assisted Reproduction Units (ARU) on the importance of assisted reproductive techniques (ART) compared to other elective procedures, to highlight the relevance of ART as an elective procedure and the impact of delayed interventions on patients.Design, Patients and Methods: An observational, descriptive, cross-sectional, online survey-based study was conducted in infertility patients and partners (n=98) and ARU healthcare professionals (n=83). The survey included a best-worst scaling (BWS) experiment and an ad-hoc questionnaire to analyze the pandemic impact on ART management and infertility patients in Spain. In the BWS, each respondent established priorities choosing which patient profile should be rated as the highest and lowest priority profile on a waiting list. To understand the importance that they give to assisted reproduction compared to other procedures, three very common elective procedures involving different patient profiles were selected: cataract surgery, knee arthroplasty, and varicose vein surgery. For each procedure, three hypothetical patient profiles corresponding to three different degrees of severity on a waiting list were designed.Results: Patients attributed greater importance to ART profiles (BWS score: patients 0.14 vs professionals − 0.05; p< 0.01) whereas professionals prioritized cataract surgery (patients 0.06 vs professionals 0.23; p< 0.01). Concerning the profile severity, more severe profiles were prioritized in all procedures by both groups. Patients’ and professionals’ perspectives on the impact of the pandemic were similar, with exceptions: information received for resuming ART; health care provision in crisis situations; and reduction of parenting options. The pandemic affected patients’ ability to conceive a child (70.4% of those surveyed), their psychological well-being (75.5%), and partner, social, and work relationships (69.4%).Conclusion: Preference studies involving patients and professionals can provide important information to define framework criteria for the management of waiting lists for elective procedures, and to prioritize interventions during pandemic periods. The pandemic impact on infertility patients highlights the relevance of developing measures and strategies to cope with similar future situations in the most appropriate way.Keywords: assisted reproduction, coronavirus disease, fertility, patients’ perspective, best-worst scaling