Psico-USF (Aug 2021)

Cerebral Palsy: Parental Stress of Caregivers

  • Mayara Barbosa Sindeaux Lima,
  • Edson Marcos Leal Soares Ramos,
  • Fernando Augusto Ramos Pontes,
  • Simone Souza da Costa Silva

DOI
https://doi.org/10.1590/1413-82712021260213
Journal volume & issue
Vol. 26, no. 2
pp. 357 – 368

Abstract

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Abstract The aim of this research was to investigate indicators of parental stress among caregivers of children with Cerebral Palsy. The study covered a total of 132 participants who responded to the following instruments: Sociodemographic Inventory, Gross Motor Function Classification System, and Parental Stress Index (PSI). Data were analyzed using descriptive statistics. The sample was composed mainly of mothers (97%); most of the children were classified under the most severe levels of motor impairment (61%). Regarding the PSI, almost half of the sample experienced high levels of parental stress (46.2%). The PSI domain with the highest percentage of caregivers with high stress was Parental Distress (60.6%). Most caregivers prioritize the needs of the child with Cerebral Palsy over their own needs more than they expected (90%). These results may support intervention strategies aimed at minimizing parental stress.

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