Attitudes of at-risk older adults about prevention of cardiovascular disease and dementia using eHealth: a qualitative study in a European context
Eric Moll van Charante,
Edo Richard,
A Jeannette Pols,
Cathrien RL Beishuizen,
Ulrika Akenine,
Mariagnese Barbera,
Anna Rosenberg,
Mandana Fallah Pour,
Hilkka Soininen,
Francesca Mangialasche,
Sandrine Andrieu,
Juliette Guillemont,
Nicola Coley,
Lotta Salo,
Stephanie Savy,
Bram van de Groep,
Cathrien Beishuizen,
Eric Moll van Charante,
Lennard van Wanrooij,
Marieke Hoevenaar‐Blom,
Pim van Gool,
Susan Jongstra,
Tessa van Middelaar,
Yannick Meiller
Affiliations
Eric Moll van Charante
Department of General Practice, Amsterdam UMC/University of Amsterdam, Amsterdam, The Netherlands
Edo Richard
Department of Neurology, Amsterdam UMC/University of Amsterdam, Amsterdam, The Netherlands
A Jeannette Pols
Section of Medical Ethics, Department of General Practice, Amsterdam UMC/University of Amsterdam, Amsterdam, The Netherlands
Cathrien RL Beishuizen
Department of General Practice, Amsterdam UMC/University of Amsterdam, Amsterdam, The Netherlands
Ulrika Akenine
Division of Clinical Geriatrics, Center for Alzheimer Research, Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Stockholm, Sweden
Mariagnese Barbera
Institute of Clinical Medicine, Department of Neurology, University of Eastern Finland, Kuopio, Finland
Anna Rosenberg
Institute of Clinical Medicine, Department of Neurology, University of Eastern Finland, Kuopio, Finland
Mandana Fallah Pour
Division of Clinical Geriatrics, Center for Alzheimer Research, Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Stockholm, Sweden
Hilkka Soininen
Institute of Clinical Medicine, Department of Neurology, University of Eastern Finland, Kuopio, Finland
Francesca Mangialasche
Division of Clinical Geriatrics, Center for Alzheimer Research, Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Stockholm, Sweden
Sandrine Andrieu
INSERM, University of Toulouse, Toulouse, France
Juliette Guillemont
INSERM, University of Toulouse, Toulouse, France
Nicola Coley
INSERM, University of Toulouse, Toulouse, France
Lotta Salo
Institute of Clinical Medicine, Department of Neurology, University of Eastern Finland, Kuopio, Finland
Stephanie Savy
INSERM, University of Toulouse, Toulouse, France
Bram van de Groep
Cathrien Beishuizen
Eric Moll van Charante
Lennard van Wanrooij
Marieke Hoevenaar‐Blom
Pim van Gool
Susan Jongstra
1Department of Neurology, Academic Medical Center, University of Amsterdam, Amsterdam, The Netherlands
Tessa van Middelaar
Yannick Meiller
6Department of Information and Operations Management, ESCP Europe, Paris, France
Objectives Prevention of cardiovascular disease (CVD) and dementia is a key health priority among older adults. Understanding individuals’ attitudes to, the prevention of these conditions, particularly when delivered through novel eHealth tools, could help in designing effective prevention programmes. The aim of the study was to explore the attitudes of older adults at increased risk of CVD and dementia regarding engagement in eHealth self-management prevention programmes, and to describe the facilitators and barriers.Design A qualitative research approach was used. Data were collected through eight focus groups in Finland, France and the Netherlands. Data were analysed following the principles of grounded theory.Setting and participants Forty-four community-dwellers aged 65+ at risk of CVD were recruited from a previous trial cohort in Finland, and through general practices in France and the Netherlands.Results The study identified three categories: access to reliable information, trust in the healthcare providers and burden and stigma of dementia. A core category was also identified: the interactive process of the three categories influencing engagement in self-management prevention programme. The categories were interconnected through an interactive process and influenced by the local healthcare culture and context which shaped them differently, becoming either facilitators or barriers to engage in eHealth self-management prevention programmes.Conclusions The study emphasises the importance of considering the interactions between the identified categories in this study, grounded in the local healthcare culture and context in further developments of eHealth self-management interventions that aim to prevent CVD and dementia.Trial registration number ISRCTN48151589