Journal of Clinical Medicine (Apr 2023)

Evolution of Quality of Life and Treatment Adherence after One Year of Intermittent Bladder Catheterisation in Functional Urology Unit Patients

  • Blanca Fernandez-Lasquetty Blanc,
  • Antonio Hernández Martínez,
  • Carlos Lorenzo García,
  • Montserrat Baixauli Puig,
  • Francisco Estudillo González,
  • Maria Victoria Martin Bermejo,
  • Maria Angustias Ortega Checa,
  • Elena Alcaraz Zomeño,
  • Arancha Torres Bacete,
  • Guillermina Ferrández Franco,
  • Begoña Benito Santos,
  • Guadalupe Fernández Llorente,
  • Maria Carmen Guerrero Andrádes,
  • Monica Rodríguez Diaz,
  • Mario Pierre Louis Lauture,
  • Isabel Jiménez Mayorga,
  • Rosario Serrano-Abiétar,
  • Maria Asunción Garrido Mora,
  • Francisco Barcia Barrera,
  • Gemma Asensio Malo,
  • Montserrat Morcillo Marín,
  • Vicenta Lluesma Martinez,
  • Maria Luisa Valero Escribá,
  • Silvia Tendero Ruiz,
  • Rosa Ana Romay Cea,
  • Mercedes Marín Valero,
  • Julián Rodríguez-Almagro

DOI
https://doi.org/10.3390/jcm12082928
Journal volume & issue
Vol. 12, no. 8
p. 2928

Abstract

Read online

Objective: To determine patient difficulties and concerns when performing IBC (Intermittent Bladder Catheterisation), as well as the evolution of adherence, quality of life, and emotional state of patients one year after starting IBC. Method: A prospective, observational, multicentre study conducted in 20 Spanish hospitals with a one-year follow-up. Data sources were patient records and the King’s Health Questionnaire on quality of life, the Mini-Mental State Examination (MMSE), and the Hospital Anxiety and Depression Scale (HADS). Perceived adherence was measured using the ICAS (Intermittent Catheterization Adherence Scale) and perceived difficulties with IBC were assessed using the ICDQ (Intermittent Catheterization Difficulty Questionnaire). For data analysis, descriptive and bivariate statistics were performed for paired data at three points in time (T1: one month, T2: three months, T3: one year). Results: A total of 134 subjects initially participated in the study (T0), becoming 104 subjects at T1, 91 at T2, and 88 at T3, with a mean age of 39 years (standard deviation = 22.16 years). Actual IBC adherence ranged from 84.8% at T1 to 84.1% at T3. After one year of follow-up, a statistically significant improvement in quality of life (p ≤ 0.05) was observed in all dimensions with the exception of personal relationships. However, there were no changes in the levels of anxiety (p = 0.190) or depression (p = 0.682) at T3 compared to T0. Conclusions: Patients requiring IBC exhibit good treatment adherence, with a significant proportion of them performing self-catheterisation. After one year of IBC, a significant improvement in quality of life was noted, albeit with a significant impact on their daily lives and their personal and social relationships. Patient support programmes could be implemented to improve their ability to cope with difficulties and thus enhance both their quality of life and the maintenance of their adherence.

Keywords